Tuesday

Always looking for convenience with MS, am trying out the IFFFT.com web service...we shall see!



via The Girl with MS http://www.facebook.com/pages/p/390109987704971

Nutrition Resource for Multiple Sclerosis

Nutritional research - GREAT RESOURCE!

http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/772

You are here : Home » About MS » Multiple Sclerosis Treatments » Supplements

Here are some vitamin supplements you may want to consider taking in general. Multiple Sclerosis is a very individual illness so each person will differ in nutritional deficiencies.

There is no substitute for having a personal consultation with a fully trained Nutitionalist or Health Practitioner.

Why take supplements?

They help you to:

Absorb nutrients from food.

Heal a leaky gut.

Strengthen the immune system, reduce

Inflammation.

Strengthen the blood brain barrier.

Improve nerve signals.

Reduce fatigue and give you more energy.

What are the supplements for in MS?

The 3 Essential: Vitamin D, Calcium, and Magnesium

Vitamin D 4000 iu/day - Vitamin D could help reduce relapses and slow progression in MS, especially in northern latitudes where there is less sunlight.

Calcium 800mg/day - Vitamin D must be taken with both Calcium and Magnesium in approx equal amounts.

Magnesium 800 mg/day - Almost every metabolic system is dependant on magnesium. Helps produce cellular energy, needed for nerve impulse transmission. Also helps metabolise the B vitamins and essential fatty acids. A magnesium deficiency is a common finding in MS. Spasticity can often be traced to low levels of magnesium. This deficiency may be caused by a diet high in refined and processed foods and saturated fat, by bran added to the diet or diuretics.

 

Oils: EPO. Fish Oil, Flax oil

Evening Primrose Oil/Borage Oil 1-5g/day (1000- 5000mg/day) - A rich source of Essential Fatty Acids. High in Omega 6 (linoleic acid and GLA gammalinolenic acid). Helps regulate the immune system. GLA bypasses all the blocking agents in the metabolic conversion process of linolenic acid. It also has anti-viral properties. To work effectively oils with GLA should be taken with a low saturated fat diet and all the vitamins and minerals co-factors: B6, Vitamin C, zinc, magnesium. Also take with Vitamin E.

Fish and Fish Oil Supplements. 2-5 g/day - High in Omega 3 essential fatty acids- Eicosapentaenoic acid (EPA) and docosahexaenoic acid (DHA).

Reduce the inflammatory response.

Needed for normal function of nervous system and production of myelin.

MS lowest where they eat lots of fish. Oily fish are best: mackerel, herring, sardines, salmon, tuna.

Seafood is good. Eat fish three times a week.

Fish Oil Supplements - Look out for ‘EPA’ and ‘DHA’ on the label, and amounts of each. Be careful of contaminants and toxins found in cod liver oil and other fish liver oils.

 

Flax Seed Oil - No more than 2 tablespoons/day Flax Seed Oil (also known as Linseed Oil) contains a good balance of both Omega-6 (20%) and Omega-3 (60%) - components of the nervous system, and needed for normal myelin. An alternative to fish oils if you are vegetarian.

 

Vitamins

 

Vitamin A - 5,000 - 10,000 iu/day - or eat liver once a week. Vitamin A helps rebuild a leaky gut.

 

The B Vitamins 100mg B Complex/day - The B vitamins work together. They are needed for:

 

The release of energy from food.

The normal functioning of the nerves and brain. Maintaining healthy skin, repair and maintenance of tissue.

The most important B vitamins for MS are: B12, B6, B1, B2, B3, B5, folic acid. B12 (cobalamin or methylcobalamin) 100 mcg/day. Needed for a healthy myelin sheath, nervous system and bone marrow. Lack of B12 can impair the processes of the immune system. People with MS may be deficient in B12 due to malabsorption in the gut or to a disorder in binding and/or transport of the vitamin.

Vitamin C 1g/day - Involved in at least 300 biochemical pathways in the body. Needed for a healthy immune system, repair of tissue and production of collagen. Take with bioflavanoids as they assist absorption.

 

Vitamin E 800iu/day - An antioxidant vitamin which helps protect cell membranes against free radical damage. Enhances immune response, slows down the degenerative process, regulates platelet aggregation. Vitamin E should always be taken with oil supplements such as evening primrose oil, fish oils and flax seed oil. If you eat more polyunsaturates, you need more vitamin E. Choose a natural form of Vitamin E as the potency is higher than in the synthetic form.

 

Mineral and Trace Elements

Zinc 50mg/day - Needed for body chemistry to property. Essential role in maintaining a healthy immune system and the metabolism of essential fatty acids. It also helps you cope with stress. Diets high in refined foods and junk food are low in Zinc. Certain foods, such as cows milk, cheese, coffee and bran can inhibit absorption. Also viral infections like glandular fever can cause a loss of zinc.

Copper 2mcg/day - Copper assists in the formation of haemoglobin and red blood cells by helping with iron absorption. It must be in the right balance with iron and zinc. Used with zinc, iron and B vitamins in the synthesis of phospholipids (long chain fatty acids) which are used in myelin formation.

Selenium 200mcg/day - Needed to make the important enzyme Glutathione Peroxidase, which helps fight against free radical and damage from lipid peroxidation. The prevalence of MS is inversely related to selenium levels in the soil. MS is high in a district of Finland called Ostrobothia where the selenium levels are low. The prevalence of MS is low in nearby Lapland, where the selenium levels are high.

Manganese 20 mg/day - Involved in the production of the enzyme Superoxide Dismutase - soaks up free radicals.

Antioxidants Combat free radicals - very reactive and unstable compounds which damage cell membranes. Free radicals are implicated in degenerative illnesses like MS.

Grape Seed Extract/Pycnogenol (super antioxidants), 2-4 capsules/day - Contain proanthrocyanidins (OPCs or PCOs) - up to 50 times more powerful than Vitamin E. Help deal with free radicals and strengthen the blood brain barrier. Bilberry extract is also very effective (possibly the most effective in strengthening the blood brain barrier).

Alpha-Lipoic Acid - 500mg/day (very expensive) - Alpha-lipoic acid is both water and fat soluble and it is the only antioxidant which has those properties. A very potent antioxidant which can travel across cell membranes so can scavenge free radicals both inside and outside cells.

Gingko Biloba 120mg/day - Helps maintain healthy peripheral circulation, including blood to the brain. Helps memory and cognitive functions. Helps keep blood vessels dilated, so allowing blood to flow more freely to the extremities, including the brain. Also works as an antioxidant and has positive effects on platelet function.

Glutathione Peroxidase - An antioxidant enzyme which helps protect all cells from free radical damage. It seems that people with MS have reduced activity of this enzyme.

Probiotics

Acidophilus 2-8 capsules/day depending on strength Living “friendly” intestinal bacteria - Helps restore or maintain the balance in favour of the healthy intestinal bacteria. Needed when there is an imbalance (or dysbiosis) in the digestive system. Help keep the potentially harmful micro-organisms (like candida) balanced with friendly micro-organisms. Leads to improved absorption of food and increased immune function.

Digestive Enzymes- 4-6 capsules/day - Enzymes are needed to digest food properly and for a multitude of metabolic functions. They turn the wheels of our body chemistry and make nutrients easier to absorb in the gut. If any digestive enzymes are lacking or not working effectively your body cannot use nutrients from food. Absorption of poorly digested food can lead to gut inflammation, leaky gut and food allergies. Food ferments in the gut causing gas, burning and bloating. Incompletely digested foods produce toxins, irritate the intestines, and enter the bloodstream. Over time this can lead to degenerative and/or autoimmune diseases. It is common for people with MS to have digestive problems. Poor digestion keeps the immune cells tied up in our gut, leaving us defenceless against virus, fungus, yeast, candida, and bacteria. So infections are more likely.

Neurotransmitters & Energy Releasers

Lecithin (also known as Phosphatidyl Choline) 500-1000mg/day - Helps in fat metabolism. A precursor of Acetylcholine, an important neurotransmitters needed for transmission of messages between brain cells.

Phosphatidyl Serine - Speeds up neurotransmitters.

Co-Enzyme Q10 - Helps release energy.

Enada - Also helps increase energy.

Amino Acids The building blocks of all proteins including all cell membranes, tissues, blood, lymph, enzymes and hormones, so are essential for good health. They come from good quality proteins such as fish and lean meat. Eight amino acids are essential because you cannot make them in your body but have to get them from foods. A lack of these essential aminos may be due to faulty digestion/absorption, which then disrupts metabolic processes creating general symptoms of weakness, fatigue and lethargy. At the Tahoma Clinic in Seattle it was found that in nearly 100% of MS cases the amino acid blood levels were abnormally low. Amino acid supplements can reduce weakness and fatigue. By improving metabolism they contribute to greater energy and well-being.

L-Glutamine 500mg/day - The most abundant amino acid in our bodies. Immune cells need glucose, but will only grow if they have glutamine too. L-Glutamine helps protect against a leaky gut, which is common in MS. Glutamine is the most important nutrient and fuel for the mucosal lining of the small intestine and the colon. The cells of the intestine or gut are the fasting growing cells in our bodies. They form a thin (one cell thick) barrier between the digestive tract and the rest of the body and have to be replenished constantly - gaps can open between these cells, resulting in a leaky gut. Glutamine also:

Reduces fatigue. It is important brain fuel.

Helps reduce cravings for sweets, chocolate, alcohol, cigarettes, drugs etc., this can help reduce hypoglycaemia (low blood sugar).

Helps in the production of glutathione peroxidase, a key antioxidant enzyme.

Delivers nitrogen when it is needed to help build muscle tissue and removes nitrogen when there is acid build-up, helping detoxification. It also helps the liver rid the body of toxic substances.

Prevents muscle breakdown. When you are under stress, for instance through illness, surgery or an accident, glutamine is ‘robbed’ from lean muscle tissue to fuel the tissues of the intestines, liver and immune system. Muscle tissue is also used to make more glutamine; this causes muscle wasting.

MSM Stands for methyl sulphonyl methane. Sulphur is essential to life. It helps repair the damaged tissue membranes, is anti-inflammatory, helps reduce pain, is anti-bacterial, anti-parasitic and reduce scar tissue. Sulphur regulates the sodium potassium pump in the cells. This process removes toxins from cells, reduces inflammation, and promotes healing. Helps strengthen gut lining. Helps in myelin repair, relieves muscle cramps and constipation.

 

Notes

The above is based on Brian’s paper published on the Best Bet Diet webpage.

The rationale is based on recommendations by Dr. Ashton Embry in Canada.

Additional material from the A-Z of Complementary Therapies for MS, by Judy Graham with Frances Pulling, published by the MSRC £12.50. Also 'Multiple Sclerosis - The Self Help Guide' by Judy Graham (Thorsons).

Subscribers to New Pathways Magazine can get a 10% discount on all the supplements mentioned from:

 

Optimum Nutrition Company (ONC)

PO Box 88

Bracknell RG12 1JF

Tel: 01344-301 344

Quote: ref ZZ MSRC

New Pathways subscriber's can get a discount of up to 25% from the Nutri Centre, depending on the product ordered, by quoting MSRC when calling. Please use the special discount line of 08456 027197 and if you experience any problems please ask to speak to Charlene.

 

The Nutri Centre

7 Park Crescent

London W1B 1PF

Do you take other supplements?

If you take other, or additional supplements, please let us know what they are and what they do for you?

 

Ambrotose

Ambrotose is the only product that contains the 8 saccharides, known as Glyconutrients, that make up our outer cell surface. This product from Mannatach is proving beneficial with a variety of conditions including Cancer, Rheumatoid Arthritis, inflammation, recovery from viral infections, Fibromyalgia and Chronic Fatigue Syndrome.

For all of history, food has provided these building blocks. But scientists are still learning the functions that specific nutritional food components play in this process. As recently as this century benefits of vitamins, minerals, amino acids and phytochemicals were discovered.

While all of these nutritional substances are important to our health, Mannatech believe that, by far, the newest and most exciting scientific advance is the discovery of an additional function carbohydrates play in human health-in addition to providing simple energy. This discovery is about the function of plant-based glyconutrients in cell-to-cell communication.

Healthy bodies are comprised of many components working together in sophisticated harmony, and must have accurate internal communication to function correctly. In its most basic form, this communication occurs at the cellular level.

To maintain a healthy body, cells must "talk" to other cells. Their "language" is one of touch written in saccharides on cell surfaces. These simple sugars combine with other molecules to make glycoforms such as glycoproteins when joined with protein or glycolipids when joined with fats. Of the 200 monosaccharides that occur naturally in plants, 8 have been discovered to be components in cell surface glycoforms.

Like thousands of different "keys" projecting from the cell surface, they will either "unlock" the required functions of the adjoining cell or not. If the right keys are available, the body functions smoothly. If not, it doesn't. Only two of the eight are commonly found in foods we eat. Our diets have changed in response to demands for quicker, cheaper methods of mass-producing food. Consequently, we are not eating foods that once supplied a greater variety of these sugars.

While the body has the capacity to manufacture all of these monosaccharides from common sugars like glucose found in the diet, the conversion process is complicated, requiring energy and time as well as numerous enzymes and vitamins.

Viruses can also interfere with our bodies' ability to make the conversions. People who are ill or who have inborn errors of metabolism are especially vulnerable to a breakdown in the process. Whenever these necessary monosaccharides cannot be made, communication is slowed or impaired as a result.

Ambrotose complex, Mannatech's unique patent - pending glyconutrient, is a blend of specific plant-derived carbohydrates that contain monosaccharides necessary for cell-to-cell communication and glycosylation which is essential for hormone and energy production.

NB: The info above is taken from the Mannatech webpage, the company that produce and sell this supplement. We cannot say whether this supplement is beneficial in treating MS or not.

To purchase Ambrotose simply visit Mannatech's site.

Kalawalla

Herbal Product Kalawalla is apparently being used by some people for MS. It is claimed to work as a natural immunomodulator with proven immunomodulating effect. It is a 100% natural product with no known toxic side effects.It claims to increase lymphocyte levels and strengthen the immune system.

Kalawalla is made from Polypodium leucotomos, a fern plant which grows exclusively in the jungles and rainforests of Honduras.The ancient Mayans used Polypodium leucotomos as part of their daily diet in the form of tea as a blood purifier. They attributed healing properties to the drink and up until today the drink is popular in Honduran tradition.

Europeans have used Polypodium leucotomos extract for over 10 years as part of an overall health program to maintain their immune system at its strongest. It has mostly been used to treat vitiligo and other skin conditions.

Vitiligo is an immune system disorder affecting the skin, which has patches of no pigment and ordinary pigment, a bit like a piebald pony.

Kalawalla is obtainable from Organic Hope in the USA at www.organichope.com and in the UK from Althealth at http://www.althealth.co.uk.

© Multiple Sclerosis Resource Centre

 

Related Items

MSM (supplement)

Combating Multiple Sclerosis Fatigue

Complementary And Other Therapies

Counselling

Diet And Nutrition In MS

Dr Bob Lawrence's Advice

Drug Treatments

Exercise and Physiotherapy

MS Health Tips

Did you find this information useful? Would you like to comment on this page? Let us know what you think! We welcome all comments and feedback on any aspect of our website - please click here to contact us.

 

Monday

Ancient Honduran MS Secret found in Rain Forest

Kalawalla...has anyone tried it? Thoughts?

Click here for some info on Kalwalla

 

leg cramps...a week of quinine, nutrition and Kalawalla? Kalawatta?

6/20/12

8:34pm

Stopping the Hyland's leg cramps.



Quinine scared me!

Ate some great mahi mahi, sorrel, quinoa dinner.

8:13am

Not sure about the Hylands leg cramps remedy. Woke with terrible cramps.not sure what from. Went on walk yesterday and thought was hydrating through the day. But obviously not enough. Today I've had a banana, 2 magnevelures, 2 coconut waters plus four glasses of water so far. Took a warm bath and massaged muscles. Soft tissues tight. Could be from wine last night. Also had small whiskey and some good sex.

6/19/12

Trying a new leg cramp homeopathic remedy. We will see.

Have been dry brushing at night.

Bathing and soaking with mineral salts

Stretching, yoga

Had a pretty rough night. Took a Benadryl for some poison oak and it kept me up all morning. Too much mixing. All I can handle is 1/2 a klonopin and 1 Tylenol pm.

6/16

First things first, morning prayer:

For The Common Task

P. 27 pocket prayer book

"Dear Christ, help me to make the common things of life and make them beautiful. Help me to do this today."

Prayer book given to Connie Craven, my grandmother, on May 9, 1965, Mothers Day, by Community Christian Church in Burbank.


Connie was a lovely lady but didn't have an easy life. She made her life beautiful in part with this prayer book. I can see how it effected her to become the angel she was when she returned to heaven. Now I need to learn this way of life. Through Christ and my faith.

MS Research:

Recovery is slow. Two days. Coconut water good but high in sodium. Lots of water retention after long hot rides. Body's natural defense against inflammation external and internal. Warm plus sunny.


Today's ride planned for 70's and shade. Should be nice.


Had good solid sleep after a day of wine tasting with girls. Came home and drank water. Took 1/2 klonopin and 1 Advil pm. Seems a good mixture but worried about liver and kidney health. Let's explore that more.

Off to get ShenTrition drink and ready for the day...

6/14

Nutritional supplement ideas for ultimate health.

Hydration research

Hyalonalic acid. Not good for MS. Naturally high levels which prevent healing of the myelin sheath.

Enough babbling. Here is some helpful information from across the pond:

Nutritional research - GREAT RESOURCE!

http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/772

You are here : Home » About MS » Multiple Sclerosis Treatments » Supplements

Here are some vitamin supplements you may want to consider taking in general. Multiple Sclerosis is a very individual illness so each person will differ in nutritional deficiencies.

There is no substitute for having a personal consultation with a fully trained Nutitionalist or Health Practitioner.

Why take supplements?

They help you to:

Absorb nutrients from food.

Heal a leaky gut.

Strengthen the immune system, reduce

Inflammation.

Strengthen the blood brain barrier.

Improve nerve signals.

Reduce fatigue and give you more energy.

What are the supplements for in MS?



The 3 Essential: Vitamin D, Calcium, and Magnesium

Vitamin D 4000 iu/day - Vitamin D could help reduce relapses and slow progression in MS, especially in northern latitudes where there is less sunlight.

Calcium 800mg/day - Vitamin D must be taken with both Calcium and Magnesium in approx equal amounts.

Magnesium 800 mg/day - Almost every metabolic system is dependant on magnesium. Helps produce cellular energy, needed for nerve impulse transmission. Also helps metabolise the B vitamins and essential fatty acids. A magnesium deficiency is a common finding in MS. Spasticity can often be traced to low levels of magnesium. This deficiency may be caused by a diet high in refined and processed foods and saturated fat, by bran added to the diet or diuretics.



Oils: EPO. Fish Oil, Flax oil

Evening Primrose Oil/Borage Oil 1-5g/day (1000- 5000mg/day) - A rich source of Essential Fatty Acids. High in Omega 6 (linoleic acid and GLA gammalinolenic acid). Helps regulate the immune system. GLA bypasses all the blocking agents in the metabolic conversion process of linolenic acid. It also has anti-viral properties. To work effectively oils with GLA should be taken with a low saturated fat diet and all the vitamins and minerals co-factors: B6, Vitamin C, zinc, magnesium. Also take with Vitamin E.

Fish and Fish Oil Supplements. 2-5 g/day - High in Omega 3 essential fatty acids- Eicosapentaenoic acid (EPA) and docosahexaenoic acid (DHA).

Reduce the inflammatory response.

Needed for normal function of nervous system and production of myelin.

MS lowest where they eat lots of fish. Oily fish are best: mackerel, herring, sardines, salmon, tuna.

Seafood is good. Eat fish three times a week.

Fish Oil Supplements - Look out for ‘EPA’ and ‘DHA’ on the label, and amounts of each. Be careful of contaminants and toxins found in cod liver oil and other fish liver oils.



Flax Seed Oil - No more than 2 tablespoons/day Flax Seed Oil (also known as Linseed Oil) contains a good balance of both Omega-6 (20%) and Omega-3 (60%) - components of the nervous system, and needed for normal myelin. An alternative to fish oils if you are vegetarian.



Vitamins



Vitamin A - 5,000 - 10,000 iu/day - or eat liver once a week. Vitamin A helps rebuild a leaky gut.



The B Vitamins 100mg B Complex/day - The B vitamins work together. They are needed for:



The release of energy from food.

The normal functioning of the nerves and brain. Maintaining healthy skin, repair and maintenance of tissue.

The most important B vitamins for MS are: B12, B6, B1, B2, B3, B5, folic acid. B12 (cobalamin or methylcobalamin) 100 mcg/day. Needed for a healthy myelin sheath, nervous system and bone marrow. Lack of B12 can impair the processes of the immune system. People with MS may be deficient in B12 due to malabsorption in the gut or to a disorder in binding and/or transport of the vitamin.

Vitamin C 1g/day - Involved in at least 300 biochemical pathways in the body. Needed for a healthy immune system, repair of tissue and production of collagen. Take with bioflavanoids as they assist absorption.



Vitamin E 800iu/day - An antioxidant vitamin which helps protect cell membranes against free radical damage. Enhances immune response, slows down the degenerative process, regulates platelet aggregation. Vitamin E should always be taken with oil supplements such as evening primrose oil, fish oils and flax seed oil. If you eat more polyunsaturates, you need more vitamin E. Choose a natural form of Vitamin E as the potency is higher than in the synthetic form.



Mineral and Trace Elements

Zinc 50mg/day - Needed for body chemistry to property. Essential role in maintaining a healthy immune system and the metabolism of essential fatty acids. It also helps you cope with stress. Diets high in refined foods and junk food are low in Zinc. Certain foods, such as cows milk, cheese, coffee and bran can inhibit absorption. Also viral infections like glandular fever can cause a loss of zinc.

Copper 2mcg/day - Copper assists in the formation of haemoglobin and red blood cells by helping with iron absorption. It must be in the right balance with iron and zinc. Used with zinc, iron and B vitamins in the synthesis of phospholipids (long chain fatty acids) which are used in myelin formation.

Selenium 200mcg/day - Needed to make the important enzyme Glutathione Peroxidase, which helps fight against free radical and damage from lipid peroxidation. The prevalence of MS is inversely related to selenium levels in the soil. MS is high in a district of Finland called Ostrobothia where the selenium levels are low. The prevalence of MS is low in nearby Lapland, where the selenium levels are high.

Manganese 20 mg/day - Involved in the production of the enzyme Superoxide Dismutase - soaks up free radicals.

Antioxidants Combat free radicals - very reactive and unstable compounds which damage cell membranes. Free radicals are implicated in degenerative illnesses like MS.

Grape Seed Extract/Pycnogenol (super antioxidants), 2-4 capsules/day - Contain proanthrocyanidins (OPCs or PCOs) - up to 50 times more powerful than Vitamin E. Help deal with free radicals and strengthen the blood brain barrier. Bilberry extract is also very effective (possibly the most effective in strengthening the blood brain barrier).

Alpha-Lipoic Acid - 500mg/day (very expensive) - Alpha-lipoic acid is both water and fat soluble and it is the only antioxidant which has those properties. A very potent antioxidant which can travel across cell membranes so can scavenge free radicals both inside and outside cells.

Gingko Biloba 120mg/day - Helps maintain healthy peripheral circulation, including blood to the brain. Helps memory and cognitive functions. Helps keep blood vessels dilated, so allowing blood to flow more freely to the extremities, including the brain. Also works as an antioxidant and has positive effects on platelet function.

Glutathione Peroxidase - An antioxidant enzyme which helps protect all cells from free radical damage. It seems that people with MS have reduced activity of this enzyme.

Probiotics

Acidophilus 2-8 capsules/day depending on strength Living “friendly” intestinal bacteria - Helps restore or maintain the balance in favour of the healthy intestinal bacteria. Needed when there is an imbalance (or dysbiosis) in the digestive system. Help keep the potentially harmful micro-organisms (like candida) balanced with friendly micro-organisms. Leads to improved absorption of food and increased immune function.

Digestive Enzymes- 4-6 capsules/day - Enzymes are needed to digest food properly and for a multitude of metabolic functions. They turn the wheels of our body chemistry and make nutrients easier to absorb in the gut. If any digestive enzymes are lacking or not working effectively your body cannot use nutrients from food. Absorption of poorly digested food can lead to gut inflammation, leaky gut and food allergies. Food ferments in the gut causing gas, burning and bloating. Incompletely digested foods produce toxins, irritate the intestines, and enter the bloodstream. Over time this can lead to degenerative and/or autoimmune diseases. It is common for people with MS to have digestive problems. Poor digestion keeps the immune cells tied up in our gut, leaving us defenceless against virus, fungus, yeast, candida, and bacteria. So infections are more likely.

Neurotransmitters & Energy Releasers

Lecithin (also known as Phosphatidyl Choline) 500-1000mg/day - Helps in fat metabolism. A precursor of Acetylcholine, an important neurotransmitters needed for transmission of messages between brain cells.

Phosphatidyl Serine - Speeds up neurotransmitters.

Co-Enzyme Q10 - Helps release energy.

Enada - Also helps increase energy.

Amino Acids The building blocks of all proteins including all cell membranes, tissues, blood, lymph, enzymes and hormones, so are essential for good health. They come from good quality proteins such as fish and lean meat. Eight amino acids are essential because you cannot make them in your body but have to get them from foods. A lack of these essential aminos may be due to faulty digestion/absorption, which then disrupts metabolic processes creating general symptoms of weakness, fatigue and lethargy. At the Tahoma Clinic in Seattle it was found that in nearly 100% of MS cases the amino acid blood levels were abnormally low. Amino acid supplements can reduce weakness and fatigue. By improving metabolism they contribute to greater energy and well-being.

L-Glutamine 500mg/day - The most abundant amino acid in our bodies. Immune cells need glucose, but will only grow if they have glutamine too. L-Glutamine helps protect against a leaky gut, which is common in MS. Glutamine is the most important nutrient and fuel for the mucosal lining of the small intestine and the colon. The cells of the intestine or gut are the fasting growing cells in our bodies. They form a thin (one cell thick) barrier between the digestive tract and the rest of the body and have to be replenished constantly - gaps can open between these cells, resulting in a leaky gut. Glutamine also:

Reduces fatigue. It is important brain fuel.

Helps reduce cravings for sweets, chocolate, alcohol, cigarettes, drugs etc., this can help reduce hypoglycaemia (low blood sugar).

Helps in the production of glutathione peroxidase, a key antioxidant enzyme.

Delivers nitrogen when it is needed to help build muscle tissue and removes nitrogen when there is acid build-up, helping detoxification. It also helps the liver rid the body of toxic substances.

Prevents muscle breakdown. When you are under stress, for instance through illness, surgery or an accident, glutamine is ‘robbed’ from lean muscle tissue to fuel the tissues of the intestines, liver and immune system. Muscle tissue is also used to make more glutamine; this causes muscle wasting.

MSM Stands for methyl sulphonyl methane. Sulphur is essential to life. It helps repair the damaged tissue membranes, is anti-inflammatory, helps reduce pain, is anti-bacterial, anti-parasitic and reduce scar tissue. Sulphur regulates the sodium potassium pump in the cells. This process removes toxins from cells, reduces inflammation, and promotes healing. Helps strengthen gut lining. Helps in myelin repair, relieves muscle cramps and constipation.



Notes

The above is based on Brian’s paper published on the Best Bet Diet webpage.

The rationale is based on recommendations by Dr. Ashton Embry in Canada.

Additional material from the A-Z of Complementary Therapies for MS, by Judy Graham with Frances Pulling, published by the MSRC £12.50. Also 'Multiple Sclerosis - The Self Help Guide' by Judy Graham (Thorsons).

Subscribers to New Pathways Magazine can get a 10% discount on all the supplements mentioned from:



Optimum Nutrition Company (ONC)

PO Box 88

Bracknell RG12 1JF

Tel: 01344-301 344

Quote: ref ZZ MSRC

New Pathways subscriber's can get a discount of up to 25% from the Nutri Centre, depending on the product ordered, by quoting MSRC when calling. Please use the special discount line of 08456 027197 and if you experience any problems please ask to speak to Charlene.



The Nutri Centre

7 Park Crescent

London W1B 1PF

90 degrees predicted...whatcha going to do?

While 90 isn't that hot, for someone with MS it can mean the difference between playing inside or out. And while in the past I've spent more time outside in the warmer months, the heat does take its toll. This summer I am committed to spending more time in the cool A/C. Boring!

For someone who has spent the majority of her time outside, spending this much time inside can help one go crazy. I have my outlets. Today it's the Olympics. The other day it was a novel. In between comes this blog and a couple of work projects. Whiskey helps. Fly casting in the street with yarn. Cards. Friends. Family. Distractions. Productive distractions are best. But staying inside gets old after awhile. So how to escape?

Click here for article on heat intolerance with MS

Hmmm, where to escape where it's cool, interesting, inexpensive?

Options: Museums, beach, libraries, movies...

Must consider finances for right now. After this last relapse and a change in priorities I put a hold on some potential work which means I'm living off of fumes right now. That's ok. Humbling if anything. So, with this in mind we can't drive, use gas or spend money. So, time to find out what museums are open when and which ones we have memberships or free days.

Click here for FREE museum days in the LosmAngeles area

Watching kayaking on tv is working for right now. Olympic white water. Just remembering how the water feels is a refreshing image for this girl with MS...And refreshing images are necessary for a healthy approach to MS.

Visualize yourself thriving in a life with MS. Realize your limitations and redefine your life. Realize your limitations and redefine your life. Realize your limitations and redefine your life.

 

 

Saturday

The Olympics, First Ladies and Multiple Sclerosis

Many of us have heard of Ann Romney's multiple sclerosis, but had not realized that First Lady Michelle Obama's father death was attributed to MS. An avid athlete, Francis Robinson III went from a competitive boxer and swimmer to couch-sitting, wishful thinker in a matter of years. This is one of the worst feelings ever! To feel so incapacitated after being so active. And to be good at something with higher aspirations than one's body will allow. But the Olympics inspire. They inspired Francis Robinson III and they inspire this girl with MS.

While meeting with the US athletes, The First Lady shared her story, growing up in south side Chicago and how the Olympics inspired her ailing father. Encouraging the athletes to continue to inspire a diverse range of people around the world.


Click here for Interview with Michelle Obama about her father, MS and the inspiration provided by the Olympics..

Ann, Wife of presidential nominee Mitt Romney, is no stranger to MS, Olympics and horses. While involvement with the Olympics help inspire it is her riding that helps keep her MS on the mellow.

Click here for interview with Ann Romney and her MS, the Olympics and horses.

One equestrian with multiple sclerosis has made it on the Paralympic team in dressage in 2012. Mary Jordan has never had day in her life without MS. The third member of her family diagnosed with the disease, Mary's dad was a quadriplegic whom she never saw stand or walk.

Mary is hoping to inspire others to live out their dreams. She not only competes for people suffering from multiple sclerosis, but also for her 15-year-old son, Tristan. Click here for more on Mary Jordan.

Well, she's inspiring the heck out of this girl with MS!

All of these ladies and their struggles with the disease are great stories. Ones I needed to hear this first day of the Olympic games, London 2012.

Go TEAM USA!



The late Amy Tryon, former Olympic athlete.

 

Sunday

Heat, Dehydration and Use of Legs with MS

Well, it was a bit warm yesterday. Went to Descanso Gardens for a stroll but didn't have my cooling vest on and could have used it. It wasn't just the high temps but an accumulation of MS stressors. Had lunch with an old friend. A much needed visit. Then cooked for family and played cards. Rested until my next guest arrived at 9:30pm. Stayed up and had another much needed enjoyable visit. Slept and awoke to some more friends visiting from Alaska. Another long awaited visit. And of course during these times enjoyed great food, wine, family and fun. But with these high temperatures, There is no real relief from the heat.

Other than staying inside next to the A/C, it's just too warm. And though I drank quite a bit of water yesterday it wasn't enough. My legs charlie horses and cramped during the night. I took half a klonopin at two different times in the night. But woke up feeling like my calves were made out of shredded cheese. Time to hydrate and rest!

As the legs tingle the day begins to unfold. Ways to make my legs feel better:

  • Stretching
  • Body brushing
  • Bath/stimulation
  • Water
  • Coffee. Doesn't make my legs feel better but keeps me grooving!
The tingling is mostly in my calves. The small muscles in my legs. If it was cooler I'd go for a walk. But alas, I shall hide by the A/C.

Off to fill my big glass with water and end this tingling once and for all!

 

Thursday

Reflection

Time to reflect. Briefly. Before the onslaught of tasks for the day.

I am so fortunate for my life. When I was diagnosed with MS in 2001, all I asked the doctor was if it would kill me. I knew nothing about MS except it was a difficult name to say under an MS attack effecting one's speech. And though it has been an often difficult journey these past ten years, it's been well worth it.

Life is different. I am no longer the uptight, get it done, executive worried about making everyone happy except those that waste my time. Today it's different. I am different. Life is different. I still push myself to limits but in a more relaxed state of mine. A healthier state of mind.

I removed a lot of stressors from my life in order to accomplish this. I sold my house in Oregon. Left the corporate world. Moved in with my parents. Rebuilt my life. Am rebuilding my life. Let's hope that doesn't stop anytime soon!

I no longer crave to own many things. Material goods, beyond what truly makes me happy, are continuously being purged from my life. If it doesnt have to do with family, friends, food, books, a laptop, photography, fishing, horses, it doesn't belong. Forced into retirement doesn't allow for many extras. My chosen life of simpler times doesn't either. Less stuff. Less stress.

Happiness is swelling through me as I experience new feelings of contentment. Not complacency but contentment. Wow. Content and liking it! My family and friends are amazing. I wouldn't change a thing. My life is amazing. And I owe it to my friends, family and faith for they are my community. I am here and well because of all three. God Bless everyone in my life!

And a big shout out to La Canada Presbyterian church and my family where I was raised to have faith and love in life. And that I do. That, I do.

 

 

 

 

Wednesday

Let it go!

First off, it's just not my issue. The fact this business wants to redo a perfectly good website because of ignorance is a waste of their time and money. As the original designer it is sad to think they are changing it to what is live now. Antiquated!

Breath....breath...it's not my issue. It's their decision to make whether it's right or wrong in my opinion.
Breathe, two, three, four...Breath, two, three, four....
Wow. How I can get so hung up for some 15 minutes over something I have no control over still amazes me! But at least I've learned to breathe through it. This is VERY Important for MS survivors - learning to let go and breathe through a situation. Our bodies do not need any extra stress or anxiety added.
Handy tips to reduce unnecessary internal toxins:
  • Visualization
  • Distraction
  • Happy Place
VISUALIZATION
In order to reduce unneeded stress and anxiety we must move from being a "power player" to being one of "finesse". Visualize the grace of a rock climber, lean and agile, scaling the face of Half Dome. Imagine the lithe, quiet movement of gazelle on the tundra. Remember the simplicity and freedom of playing as a child.
Learn how to optimize your energy by learning how to redo each chore and activity utilizing less energy. Like right now, while typing this, I performed a quick body analysis: is there tension in any muscles? Yes! From the legs to fingers there was energy to be preserved. How is my breathing? Tense as well. Stop typing. Arms up. Deep breath, chest high. Shoulders relaxed. Let arms fall by your side. Exhale, Ahhhhhhh.
Analyze the body. Legs tense again? Wiggle and waggle. Exhale, Ahhhhhh. Amazing how quickly we can overuse our energy and we do not have any to waste!
Visualize what and who you want to be. Do not let MS define you. Survive and Thrive!






I use grape seed oil which can also be used for baths and body oils and is great for skin AND internal use mits an all around superfood!




HAPPY PLACE

Go to a happy place. Get out of your head, mind and body if you can. Go horse back riding, painting, writing, whatever it takes. Get happy! Readjust the attitude then go back to the project at hand. Today my happy place came from good friends, good coffee, and a quiet zone to write uninterrupted for an hour. Yes, that and topped off with some Hawaiian slack key guitar music, once again we have a state of nirvana.

A quick Body analysis proves that the tension has left. Energy is being consumed like the battery side of a hybrid car, conservatively, which is what we want.

Only we know when this excess energy is being burned. Our awareness and honesty with ourselves. Do we need to slow down? No one can answer that question but ourselves. And only if we want to have this choice in the future must we manage how our energy is spent today. Conserve and Preserve.

Xo,

TheGirlWithMS



Monday

Stop and smell the roses

One of the most importent survival tactics with MS. To stop and smell the roses. And to enjoy them!

 

 

Sunday

Blogsy vital to role of this girl with MS!

Loving the blogsy app for blogging with an iPad.

Formatting is a breeze. So is blog management incase you have more than one blog.

TheGirlwithMS.com. Coming soon!

ShenTrition

Quick shout out to the folks at ShenTrition. A Chinese/American herbal protein supplement that has rocked my health for six years now. Part of my solutions for thriving with MS!

 

 

Great foods for thriving in this summers heat!

 

 

Eluding MS in the Eastern Sierras

Time for the Eastern Sierras! Aspendell to be exact. Five friends. Five days. My goals: relax, laugh, eat, enjoy, catch a wild trout on a dry fly.

Balance was a bit of an issue and my friend found and made me an awesome walking stick. It's always good to have a portable hiking stick with you, especially when carrying photography and fishing gear!

MS just seemed to fade away at 8500' and cooler temperatures. No need for cooling vests except for the day we went to Bishop to check out potential barns for horses. Instead my days were filled with friends, food, fly fishing, photography, hiking and more.

Here is a Leichtlins Mariposa Lily or a Calochortus leichtlinii

And a toast to one of the greatest beers ever brewed! Nothing like a Sierra Nevada pale ale while in the Sierra Nevadas. Ahhhhhhh. This is the life!

Cooler temps allowed for this woman to forget her MS and enjoy life. Wahoo!

More photos here - http://carolinecraven.smugmug.com/Nature/Aspendell

 

Ms and PMS. Twice the Trouble!

I should know by now. My MS is always worse the week before my menses. PMS and MS. PMSMS. As if one isn't enough... This last week I couldn't get cool at night. I didn't experience the heavy sweats last night as in the past. But woke up and knew to get to the bathroom. I had just been thinking that it had been awhile and I should check the calendar. But here it is! A few days early. Being as I'm 45 I could be heading for a pause in my meno. The point is that there is a definite relationship between MS and PMS. Would like to figure out the hormonal details.

Today was a doozy with my MS escalated. Cramps and back spasms. Energy, vision out the door. In need of a gentle day. Stretching, yoga, bath soak, praying, thanking God, breathing deep...

Water. Lots of water. And half a Vicodin for the pain. Especially because yesterday I indulged in a margarita and some great Mexican food at Dona Maria's. Yum! Best chile verde around. That was after taking a great horse ride and stopping at farmers market for some incredible produce. A wonderful Saturday was had by all.


Sunday mornings are my favorite. Today was the invitational for the trail trials. Dreamy and I qualified twice. But neither Kathy nor I had the energy to go. And I'm glad. While spending the morning talking to God and being gentle I felt the motivation to write again. I go in stages, writing. Not writing. But There is much to share about Multiple Sclerosis or MS.

MS can often be managed by lifestyle, nutritional and other changes. Don't give in to all the western medicines being thrown at you. Look deeply into the options and find a solution that works with your life style.

I did and couldn't be healthier!

Fortunately, after six months on the Copaxone shot, I was submitted into a double-blind, three-year T cell vaccination study at USC, federally supported. After going off the shot I took matters into my own hands.

While becoming certified in holistic nutrition via Bauman College, the lessons learned about the relationship between food and MS were significant. In addition, because my MS hit so that the loss of vision and the inability to walk unassisted was devastating, yoga became a necessary therapeutic relief. And it still is to this day as I just wrapped up an intimate yoga session with God being thankful for my life with MS. For I have changed much these past ten years.

My main MS solutions in a nutshell:

  • Faith
  • Family and Friends
  • Lifestyle management. Reduce stress.
  • Priotize appropriately
  • Manage each day as a new day
  • Simplify. Continually simplify.
  • Manage external and internal toxins
  • Yoga, gentle movement
  • Exercise, horses, fluid movement.
  • Fresh, fun foods.
  • Photography.
  • Fly fishing
  • ShenTrition. A protein green drink designed by chimes medicine. Http://getshen.com. Six years. Will not stop.
  • Anger management and stress relief awareness
  • Medical marijuana for many symptoms. Pain, tremors, fatigue...
  • Manage stress, anger, boundaries
Find a system or program and work it everyday.

And find good outlets. Mine include photography and writing....

 

See you back here. And stay cool!