Thursday

Being Thankful and enjoying the Moments!

Ninja nephew ...
Something about the combination of Dr. Seuss' "Oh the Places You will Go" and UFC Affliction tee shirts...love these guys.
Boys creating...me toodling around with state bird and flower concept for each state for MSontheRoad. I have a lot to learn but love the zone with painting. I'm liking the water color as it works a bit like physical therapy for my MS, especially the use of a delicate touch with the brush. Very cathartic.
One tenth of the food that will appear on the table in a few minutes...

Progression of a Thanksgiving, family close. Been a few years since we've all been together and it was a beautiful day. MS has its benefits despite its annoyances. One for me is getting closer to family. I have a rocking family and my two nephews give me a sense of life not experienced before.

 

Wednesday

Thanksgiving, Radio Show and MS

While it's not all rosy, life with MS brings benefits. Yesterday I was a guest on a new radio show, Life's Journey's with Tim Manson, the 7 Minute Motivator. Tim is an executive coach, has MS and has found solace through horses his entire life. Sound familiar? But man can he can motivate! I was moved to tears seconds before Going on air.

The show airs every Tuesday at 10am PST on VoiceAmerica.com.

Click here to hear the broadcast.

I come in about 15 minutes into the show but don't miss the beginning. Tim is amazing!

While preparing for this radio show and because it is Thanksgiving here in the USA, my attention toward gratitude has been overwhelming. My new mantra:

Go to sleep with a thankful attitude and you will wake with gratitude.

And then, after break, he brings me back on and honestly, I felt like Catniss being introduced as the Girl on Fire in the Hunger Games. Or the prize filly at some famous Thororoughbred sale. Goosebumps. Pride, but just enough. I'm sure I was sitting an inch taller when he was done.

Click here to hear the broadcast.

Before the show I spent the morning doing a little chatting about being thankful. I got the body moving just a bit and the energy in a good rhythm for the day.

So thankful. Much gratitude.

Amazing what one person can bring to one life. My limited time with Tim was motivating. I can see why he is successful as the 7-Minute Motivator!

Click here to learn more about Tim Manson's services, as a motivational speaker, his business, Innovative Horozons and his amazing EAGLES program with horses and executive leadership.

And to keep up to date on Tim's activities, check out his Facebook page: Facebook.com/LifesJourneywithTimManson

 

So much to be thankful for this year! But now it's Time to get back to the kitchen, prepare for friends and family and all the good stuff coming up in the next 36 hours.

Happy Thanksgiving Everyone!

 

Monday

Blessing and Thanksgivings for MS

Here is a quick list I wrote for my thankfulness with MS. More to come...

MS Thanksgivings and Blessings. A start...

Learning to stop and smell the roses

Working for self. Creating flexible life.

Redefining role as career woman to that of freelance designer, marketer, photographer and easy going gal.

Appreciate going from Uptight to more chill.

Thankful for becoming a life coach and helping others with MS.

Learning to not let stress take over my life

Not stressing the little things

Learning to set boundaries. Most difficult me thinks.

Spending time with family. Adjustment but worth it.

Thankful that I lived life to the fullest until I got sick

Thankful that I can be flexible with my bucket list to work with my MS

Thankful for the double blind USC study.

Thankful for friends and family.

Thankful to social media ms family. The only ones who really get it.

Thankful for the research and information about MS from all types of traditional and alternative approaches.

Thankful that I wake up.

Thankful for my community, neighborhood, friends.

Thankful that I've learned to feel more complete by being able to do a little freelance work, volunteer time and me time

Thankful for realizing the importance of Me time!

So thankful for renewing my relationship with God. Strengthening it.

 

Sunday

Depression, moods, emotions and MS

After twelve years of this disease it still amazes me how the emotional roller coaster can come full swing without a moments notice. Ever get that feeling? There are triggers for sure: fatigue, general MS, menstration, not taking care of ourselves, etc.

But then bring on the external factors. Family members who are rude or inconsiderate, friends of the same. Work situations. Not that they necessarily intend to be mean but with MS sometimes the smallest trigger can feel like an avalanche.

I recently felt this way during my birthday. While my friends were there in full force, new and old, the family chose to spend the week without me. No celebration at all. Not even an offer when they returned. Not even an offer for dinner. A card was mailed but never received.

While being 47 is not a mile marker so to speak, every day is a mile marker with MS. It was very hurtful to be ignored at a time that should be about family. It was a bit predicted as last year I had to set some boundaries and limits for my MS and it upset the family. I was actually told that my boundaries didn't matter and they further hoped that I had a miserable birthday next year because of my actions to protect myself. Pretty harsh words and sad part is I don't even think they remember saying it. Words really can be the mist violent weapon. I am guilty of snapping myself. And something I am always working on. Being kinder with my words.

While I had a nice day it was a worst day. A terrible week as my moods fell dark. Too dark. I scared even myself.

It's times like these that I fall into my recluse mode. I write, paint, draw, doodle, watch falling leaves and sleep. Depression brings sleep and boy could I feel it. I also fought a virus and then got bit bit by a dog and on antibiotics. Guess I just was scheduled for a down week all the way around.

But Today was a good day for falling leaves and the sunset helped improve my mood.

I didn't like being on mood stabilizers. I felt too numb but this emotional roller coaster is a disaster. I have woken up crying every day for a week. This is not like me. But it so like my MS.

Time for a change!

Doing some meditation and positive visualization this morning. Some major mood altering!

Remembering what it was like to be riding that Tennessee walker. Visualizing the physical rhythm of riding helps me calm down inside.

Also, to pull myself out of a slump, is to think of positive times, feelings and emotions. And remembering to be loving and kind to myself even if others are not.

Gentle, kind, watery, soft, flowing...I shall be as kind to myself today as it takes to put color to paper. I can do this!

Friday

Motivational Muse visits Moms with MS In Rancho Cucamonga

Another MSontheRoad adventure! This time to Sunny Southern California.
I just met an amazing group of women, Moms with MS in Rancho Cucamonga. I learned so much from them and left feeling inspired. And then they termed me a Motivational Muse! How cool is that? Gave me goose bumps and all.

While this is a group for moms with MS it was great to see a supporting husband in the mix. Two women were recently diagnosed, within the past couple of months. It's been twelve years since my diagnosis. Another lady was diagnosed eighteen years ago. The years make quite a difference from that initial shock to eventual comfort and ability to laugh at this disease. The years have also provided a plethora of new medicines and knowledge.

Since I don't drive much with my MS, I headed east on Metrolink. Got a lift to Union Station, Los Angeles, with my dad.

Driving past the turn off Dodger Stadium. Funny how I get anxious just looking at this photo. Country lanes are so nice...

Union Station is an architectural gift. Didn't capture it this trip but some feeling of this landmark.
Public transit rocks! But I forgot to use my disabled placard for the discount.
The Los Angeles River along the freeway.
Nice to see folks unplugged.
I arrive! My twitter friend, @redheadnut was waiting for me. Our first meet up and it was amazing!
And off we went to the Rancho Cucamonga Family Resource Center to meet the Moms with MS.
 

MS is challenging enough. Throw in children and that's a whole different story. Its one thing when a person with MS can take a "me" day. Or just some "me" time. But MSrs with children don't have that option. Children are demanding no matter how perfect they can be. Well once a month these moms can get together to vent, cry, laugh and be with someone who truly understands.

The group was founded by Kim Zolotar and AnaMarie Strand a couple of years ago. Both with MS, both with different symptoms. Typical for MSrs as we know.

True inspiration. Moms with MS plus me. I have nephews and can relate to 1/10th of what these women have gone or are going through. Feeling very blessed to have heard their stories.

The first part of the session was interesting question and feedback throughout the group. Especially the newly diagnosed which is always great for us old timers to hear. To remind us what it felt like in the beginning. And to be able to provide support, information and help.

The challenges of motherhood were apparent. The discussion lively and filled with support.

Then I came on board with my workshop on "Managing MS like Managing an iPhone Battery". A casual discussion on tools we can use to preserve our delicate Ms batteries. These ladies had some great I put!

I got a lot of great feedback from the ladies. One of the best ideas was to remember we need to not only have Plan A but Plan B and Plan C with MS being so random and all. Now trying to explain that to a four year old, well, that's just difficult.

We also discussed the importance of taking Disease Modifying Drugs (DMDs) such as Copaxone, and how it's helpful and healing for us to know that we are doing something for our disease. Copaxone is a popular shot used for MS. I was on it when first diagnosed and I know that feeling. I was eager for any help. Give me any opportunity to not have to go through this hell again.

It's not only drugs and medicine that can make us feel like we're doing the right thing. Massage. Nutrition. Taking time to smell the roses. Reducing life stressors. Retiring. Learning to live on a shoestring. Many, many life choices affect our health. This group gets that concept and it was refreshing to hear their ideas, solutions and issues.

Moms with MS is a support group that meets the second Tuesday each month from 12:00pm - 2:00pm in Rancho Cucamonga, California. Some folks drive as far as Victorville to attend. And I can see why. I walked away feeling inspired and wanting a similar group within my community.

And as if that wasn't enough. Feeling inspired, grateful and now a "Motivational Muse", my friend and I went to explore some of Rancho Cucamonga.

She took me to one of her favorites, the Wine Tailor. If you are into wine, I highly recommend it. The patio is just lovely and I believe that have music and events at night. We grabbed some cheese and fruit from the market next door and enjoyed some lovely wines and great discussion.

Time flew by as it does when life is good. I had an event in the evening and needed to return and my lovely friend drove me back to the homestead under a pretty amazing sky.

When I hit the pillow that night I was equally both physically and mentally exhausted. Not to the point that I would be wiped out the next day but sleep came deep and long. Lingering in my dreams in the morning reminded me of how nice that feeling is, to be truly tired in so many aspects. Especially with MS.

It came up during our workshop. How often the body is failing us and the mind can't stop. Or vice versa. And how difficult it is to get a good night sleep. If we could just get a good night sleep....

 

Sunday

Living a full day with MS: MSontheRoad, painting, gardening, cooking

Woke up and felt pretty good. Then as the day progressed the body started failing. Legs on fire. Out of control pollen causing havoc on lungs. Saturday means farmers market and I'm ready for that. It also means puttering in the garden and doing some chores. This time of year it also means college football. Now as many of you know, I used to be Puddles the duck and am a very big Oregon fan. I am still feeling crushed by their loss to #5 Stanford on Thursday night. Can't imagine how the players are feeling. But it is a game and there will always be a winner and a loser. And then, another game.

The early morning hours were spent planning my next MSontheRoad adventure which happens to be this coming Tuesday. I'm heading to Rancho Cucamonga, California, and meeting up with a new Twitter friend @Redheadnut, then heading to a local support group, Moms with MS. So psyched! I don't drive much so I am taking the Metrolink.

I'm holding a small workshop on "Managing your MS like an iPhone Battery".

And since RC is a large wine area and because we want to, we are heading to some wine tasting afterwards.

And then hop on Metrolink and head home to hear my folks talk about their trip to Israel. A busy day for sure. But that's not for three days. Time to enjoy today!

As the morning wandered in, we hit farmers market. Love this place...and love my new Earthwise washable produce bags.

Puttered in the garden and watched it grow. Have a new favorite nursery, Lincoln Avenue Nursery in Alta Dena.

Red rain Asian greens. Delicious!

Doing a green garden this winter. Cool greens and some with a little spice. Looking forward to using them.

Feeling a bit tired decided to take a rest and recharge.

As the temperatures rise a bit, around 80F, decided not to walk in the middle of the day. Wanted something different...what haven't I done in awhile?

Remembering my Oregon fishing hole and playing with water colors. Obviously Im a bit of a hack when it comes to painting but love the feeling. Remembering an image in the back of your mind and portraying it on paper with a medium as delicate as life itself. I have a lot to learn in this area...

And now it's that time of day to start working on dinner. Making stuffed acorn squash. Have ground pork, apples, dried fruit, wildrice and pistachio nut meats, which I think will medley up real nice. Sprinkled some cheese and topped with fresh roasted acorn squash seeds.

And it turned out beautifully!

So much for a full day. Evening settles in. Time with the family. Part of a moon.

Sometimes we all just need a midnight snack in life...

Well, this was a wonderful Saturday. So thankful to be. To have greatfriends friends, good memories and great adventures on the horizon.

Living with MS means living the best you can with what you've got. Sometimes it means staying in bed. Sometimes it's conquering the world. Each day is different. Just as each person is individual, so are their struggles with multiple sclerosis. It's time to acknowledge our disease and learn how to make the most of it.

So, Take That MS!