MS in Jackson Hole, Wyoming

Our Tour is about to start!  A scenic float trip down the snake river.  Camera is ready and so am I. We arrived two days ago. The weather cooperated and the Tetons showed their stuff.

 We took a leisurely hike yesterday to Christian Pond. The MS stayed at bay and I was able to walk the whole way.  It was not a long hike but we are at some elevation. And it was Gorgeous!  
The boys played with a frisbee that Tauck gave them as part of their care package for the tour.  We start in Jackson Hole, travel to Yellowstone then on the Cody and Mt Rushmore. 
I took a solo lunch yesterday with cheddar cheese soup and a Pako IPA from a local brewery.  The weather has been cool but I've been wearing my Arctic Cool shirts just in case.  Just knowing that they can cut the heat a few degrees...  I'm going to be away from internet and wifi and unplugging for a few days. Then I'll be back! 


More to this spot!  


Peeing One's Pants - Really?

The day has come.
Diapers? But I want to Snaughle with confidence!

Yes, really. Nervous bladder nelly here has recently been living in her disposable diapers and pads. These things are nasty for the environment. They must be. And if you wear one once but not soil it, well, that's kind of gross to reuse it. And then the red rash comes. I bathe. I clean. I dry. But one day in those disposable wraps will get me every time. Especially now that it's bikini weather.
But wait, I can't completely bash the disposables. Without them I would be a mess! Like just last week when I was serving jury duty in Burbank, California. Usually I have a doctors release. And I did this year. But it came the day after Memorial Day. How could I at least not try this year as I have been recently blessed with better days? Think of the hundreds of thousands of soldiers over the course of history and what they have done or are doing for their country. Time to step up to the plate Ms Craven. Time to step up to the plate.

Well I made jury duty and the case was dismissed by noon. Phew, I made it! And hadn't peed my pants. I took advantage of the restroom then went to my car and drove ten minutes to the Los Angeles River. And decided to do a little fly fishing. I wasn't really feeling it. Body and mind were out of sync. I watched the water for a bit. Made a few castes. Then headed back to car. Either way, Uh oh. Bad choice. Quickly I got to the front seat of my car. Time for the coffee cup. My bladder needed evacuating NOW! And I could tell the diaper wasn't going to hold it all. I hadn't had anything to drink. Where was this all coming from? So I tactfully positioned myself over the cup and then proceeded to overflow all over the front seat of the car. The diaper was used, the mess was mopped. Well, That was interesting. I cleaned myself off best I could and realized how thankful I was not to have been in the courtroom. Ack!

So, although my disposables have saved me time again, the desire for reusable protective underwear is intriguing. And now very accessible via Wearever:

Here is a great program that we took part in back a couple of years ago in 2015.  The promotion is not valid anymore but what a great way to help MS patients.


Check out this program with MS Foundation and Wearever:

This is great news! Talk about a win win for everyone. MS Foundation partnered with Wearever back in June 2015 to raise money to support MS Foundation’s efforts. Wearever is a health and wellness apparel brand with lines of incontinence underwear that assist those living with incontinence maintain their dignity while also being protective, comfortable and affordable. These innovative undergarments can be washed and re-used 250+ times, saving the user hundreds of dollars on disposables.
Wearever is donating $1 for every purchase of men and women’s undergarments made in June back to MS Foundation.

Thank you Wearever for helping us all with MS live a better live with our various illnesses. We appreciate you!This great program has ended so but we can still act today and see how we can help our bladders!

UPDATE: the panties came and I am sporting the smooth and silky as we speak. Go ahead, make me laugh and snaughle! While I know the underwear won't hold a pint I do know that I can leak with confidence! And that's a huge confidence builder. In fact I'm going a walk right now and now plastic diaper on my bum.

Thank you MS Foundation for all you do to help us With MS. Check out their website and to see all the great events, research and activities going on around the U.S.
Let's do this!


Guest Post "Just Another Haircut?"

Just another haircut?

by Jennifer Digmann

A British survey conducted by the hair care line Tresemme found that the average woman spends a staggering $50,000 on her hair over her lifetime. In addition, each year we women spend an average of $800 between shampoos and conditioners, styling products and haircuts. Plus, those of us who color our hair tack on another $330 a year.

Outrageous, isn’t it?

What’s worse is that after I read this statistic, it simply served as a reminder that I needed to make a hairappointment. After all it has been almost 6 weeks since I went short with my hair. Okay, maybe it is not as short as some people expected, but it is short to me.
Since being diagnosed with Multiple Sclerosis more than 16 years ago, my hair length is just another causality of this progressive disease as I’ve had longer hair (middle of my back) most of my life. My hair being cut short is kind of like my driving, working and walkingnone of which I am able to do anymore.

Please understand that I haven’t just given in to the disease. I have had oodles of physical therapy to maintain as much as possible, but it gradually has taken these things from me.

Because my arms and hands don’t function as well as they used to, I have made concessions to the disease. It started with simplifying my hairstyle (keep in mind I am a child of the lots-of-Aqua-Net-big-hair 80s, so you can imagine what I mean). Then Ibegan to ask my husband, Dan, for help. And while he could blow dry and flat-iron my hair with the best of stylists in town, how fair was that daily demand to him? So I have learned to accept and appreciate my natural curls. But it was not until the haircut I received 6 weeks ago that I felt totally confident with my “do, and with doing it myself.

My stylist, Elizabeth, put all of the pieces together in one hairstyle. A little shorter than shoulder length, minimal styling products, wash-and-go curly hair. And you know what? I love my cut! Plus, I have been getting lots ofcompliments on my new shorter style. Yeah, sure that wasn’t why I did it but going shorter and being complimented on my hairdo is a nice perk.

More than anything, cutting my hair has allowed me to regain control over something that my body was letting MS take away. I’ve regained control over my hairstyle, which I like. Bonus, it boosted my confidence, which I love.

Originally posted 12/18/13