Guest Blog Post: Dr. Terry Wahls Recruiting for Diet Study


TWO MS DIET STUDIES are RECRUITING

MS Diet Study Research Opportunity Worldwide 
Many people with multiple sclerosis (MS) are very interested in dietary approaches to managing MS-related symptoms. 

Unfortunately, there is not a lot of research on which diet people should follow. Research has mostly focused on which supplements to take. Studying food choices and diet is much more complicated and equally as important. 



Right now there are two studies planned to examine if there specific diets that help reduce MS-related symptoms.

To find out the impact of specific diets, we need participants. Please consider enrolling in these two studies. 

  Dr. Terry Wahls  

1st STUDY:  Dietary Approaches to Treating MS-Related Fatigue 
Dr. Terry Wahls does clinical research at the University of Iowa, studying diet in the setting of multiple sclerosis. We are conducting an interventional study to understand how diet can affect fatigue. 

In our study we will be comparing the effectiveness of the low–saturated fat diet (Swank) and the modified Paleo (Wahls Elimination) for reducing the severity of MS-related fatigue symptoms and quality of life.   

The study lasts 36 weeks. We conduct baseline assessments and ask participants to continue eating their usual diet for 12 weeks, during which time there are repeat assessments. Then patients are randomized to one of the two study diets, trained on their assigned diet, and receive coaching calls to help them successfully adopt and sustain the study diet. There are repeat assessments 12 and 24 weeks later. 

We are currently recruiting participants and will continue recruiting through early 2019. Participants must have a diagnosis of relapsing-remitting MS, fatigue, and live within 500 miles of Iowa City, Iowa. This includes the states of Iowa, Illinois, Indiana, Missouri and Wisconsin, and parts of Arkansas, Kansas, Kentucky, Michigan, Minnesota, Nebraska, North Dakota, Ohio, Oklahoma, and Tennessee. 

Individuals interested in being considered for enrollment in this study may complete screening questionnaires and use code JMJPYEJHP. 

For questions, please email MSDietStudy@healthcare.uiowa.edu or call 319-384-5002.



2nd Study:  Complementary and Alternative Medicine in Multiple Sclerosis  
The second study is an observational study being conducted at Bastyr University for people with MS, optic neuritis, or clinically isolated syndrome. The survey asks participants about their diet, complementary and alternative medicine use, current symptoms, and quality of life. 

Participants are asked to complete surveys twice a year. Because it follows people over time, this study can also help answer questions about which diet is associated with better quality of life and fewer MS-related symptoms. 

Also, because this is a survey-only study, people can participate from all over the globe. You can learn more about this study and complete the surveys using this link.

Please consider participating in these important studies and encourage others to consider participating as well. Changing clinical practice so dietary advice is part of the care for people with MS requires research that asks the question, “Can diet reduce MS disease severity?”  

We have two studies asking that question. MS researchers from around the globe including myself and the MS community are anxiously awaiting the results from these studies. I hope you’ll consider participating. 

We’d love to include you! 

MuckFest 2018 is Here!

Have you Mucked yet?  

Yes, I said MUCK.  

Because that’s how people across America are saying #takeTHATms!

MuckFest MS is the 5K mud and obstacle running course that raises money for the National MS Society.  Well, it is here and if you have not tried it this is the time. 


Girl with MS has partnered with MuckFest MS to help make this event even more successful by offering a special $15 OFF coupon for online registration.  

Use code: GIRLWITHMS 
for $15 OFF online registration for all remaining 2018 events. 
                                         
Anyone can participate.  Due to my MS, my running and racing days are over.  But there are many of us MS warriors who are able to compete.  One of these racers is social media star Randy Patrick @MustStopMS and MustStopMS.com.

Many of you know Randy from his awesome work with #chatMS on Twitter every Monday, 7pm EST.  He also won the WEGO twitter award for excellence last year.  

Here is Randy competing in last months MuckFest.  
In fact, click HERE 
 and vote for him as best pic.   




Boston and Philadelphia have already happened but there are four more great locations to choose from:

MUCKFEST DATES

New Jersey: July 21   BOGO going on now for this one - Buy one Get one FREE!
Detroit: August 4
Chicago: August 25
Denver: September 15



Use this code GIRLWITHMS for $15 OFF online registration for all remaining events in 2018.  


Win a GoPro camera! 

Submit your favorite MuckFest MS or OCR training photo for the chance to win a GoPro! It’s easy! #MuckFestMS #NationalOCRDay

#1: Post! You can post here: http://muck.ly/OCRDAY
#2: Vote for your favorite MuckFest MS photo!
#3: The photo with the most votes wins a GoPro!


#MuckYeah #MuckFestMS

I was just diagnosed with MS. Now what?

New to MS?  or want to feel better with your existing MS?   

There is so much to cover with this title which is why my new book is in production!   But in the meantime take a look at these comments and tips.  Most tips below are linked to articles that I have written as a Patient Expert, Health Journalist and Life Coach.  Please click on the link to see studies, articles and more.  

Become an MS Warrior


1.  Take a deep breath.  It will all be OK.  You are in for a change, but the levels vary for everyone.  Just know that things will get better and life will continue.  MS hits everyone different.  It will be important to be very compassionate toward yourself and your life as this disease unfolds.    

1.    Find a good neurologist – an MS specialist.
2.    Understand you are going through a change.
3.    Emotional balance may seem to slip away – seek help. 
4.    Talk with your MS Dr. regarding Disease Modifying Therapies (DMTs)more
5.    Love YourSelf!  Its good for MS!

2.  Modifiable risk factors:

MRF's are choices we have control over. Things we can start or quit depending upon our needs.  While none of these in particular cause MS, there is substantial proof that the following actions are beneficial for MS patients:

1.    If you smoke cigarettes, quit. 
2.    Reduce, respect or quit alcohol.  
3.    Limit salt intake.
4.    Reduce, respect or quit caffeine
5.    Do not use artificial sweeteners such as aspartame  (excitotoxins)
6.    Take additional Vitamin D(if low)
7.    Take Vitamin B12 (if low)
8.    Take an NRF2 activatorsuch as Protandim™ to fight oxidative stress. 
9.    Eat a healthy diet.  Nutrition is everything!
10.Eat a diet high in fish
14.High-dose biotinand potential for MS
15.Creating your own health:  using diet and nutrition to help MS



3.  Alternative therapies that might interest you:

1.    Yoga
3.   Massage



4.  You may find these fact-checked articles and “MS connections” interesting:

1.    MS and Epstein Barr Virus
2.    MS and antidepressant
3.    MS and decision-making
4.    MS and Sunshine
5.     MS and stem cell treatment
6.     MS and brain stimulation
7.     MS and horseback riding
8.     MS and laughter therapy
9.     MS and sense of smell
10.  MS and Exercise



5.   Life-skills.  Tips  and articles.  

1.    Keep a health journal using Health Storylines APP
2.    Start a hand-written journal.  Handwriting is great therapy.  
3.    Build your support team.  Write down who is on your “Team”:  friends, family, doctors, pharmacist, nutritionist, massage therapist, yogi, God, whomever works for you. This list will grow and evolve during your MS.  
6.    Why me?  3steps to managing your angerwith MS.
7.    For better health, watch your words.  
8.    Can video games help MSsymptoms?  
9.    8 cooling and healing rituals for summer.
10.Get outside for 5 stress-busting exercises.  
11.Superhero saladrecipe for summer
12.3 recipesto help transition into spring. 





Contact me for any question!

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