Thanks for joining me in my never ending quest for better living with multiple sclerosis (MS). I use lifestyle, nutrition, essential oils and other tricks to manage my MS. 13 years ago I couldn't walk or see unassisted. Things have changed! I still relapse. I still have symptoms. Life itself has changed much. But there are ways to help manage MS with natural healing.
I guess if you go to bed by 9pm it makes sense to wake up at 3. Doh! Oh well. Actually feeling pretty rested and restored. I needed a few down days of quiet and mellowness. I did chores all day yesterday or so it seemed. Definitely get print things checked off my list. And then received tragic news.
My friends husband up and died on her Sunday of a heart attack, less than 24 hours after hirs daughters wedding. Not very old. In good health. So tragic and sad. Gap fell into a big pool of tears and figuring out how I can actually help the family at times like this. How does one truly help and not hinder? I'm still figuring that one out.
Other than the tragedy it was a quiet time. Slowly moving through the day I got my stuff done. The trick: don't be In a hurry. I even spent quality time with friends and LWD. Little white dog. It was a day of friends, support, struggles and more. A day I don't want to relive but one that showed all loving aspects of life. For that I will appreciate this day forever.
Using some aromatouch in more sore muscles and diffusing frankinsence and serenity. Ahhhh...
Been awake since 3am then 5am. What is it with MS and sleep? I find it's difficult to get both the physical and mental energies dialed down at the same time. And this heat! It's not even that warm yet but my body is feeling it. Well, Ok, the internal heat is probably from the food choices I made last night.
I really wanted a nice lazy Saturday morning with a black cup of coffee and nice eggs and bacon. Unfortunately it's all too fatty, salty and warming for me right now. Bummer! But I must listen to my body or pay the price. I'm paying a bit for last night as we were at a Tournament of Roses happy hour fundraiser and I ate so poorly. All the appetizers were fried, processed, salty. I devoured some celery, my body crying out for cooling, clean eating food. But generally it was not a meal for MS and here I am, Saturday morning NoT drinking my black coffee. And with that whine I'll be cooling the body and nerves with Mamaki tea from Hawaii. Love love love this stuff and off to make a cup. Hold this thought.
It feels so darn good to be writing again, the cathartic release rushing through the bloodstream. It's only been a couple of days but the real pleasure comes with being able to sit down, relax, and fall into ones writing, putting all other concerns aside. I have been too hurried lately. And that's not how I want to live my life. MS taught me that much. And I have already made major decisions that will positively change this in the coming months. As we know with MS it's essential to set priorities and boundaries and to stick with them. I recently excused myself from a couple of positions to lighten up my load and I am taking a much needed vacation at home and spending time with friends and family - the important things. AND, Being mindful and growing ever more aware.
And I am ever so mindful of the lovely Mamaki tea I am drinking. And aware as my body begins its shift from the MS blahs of this morning to a new level of clarity and inspiration. And check out the nutrient factor. Pretty cool: from www.miraclemamaki.com. I don't understand why crushed leaves would have no iron but whole or ground does. That will require some more investigation. In the meantime, it's interesting at least.
Do you know the Hawaiian Legend of Mamaki? Here's an earlier post about it on my blog: click here for GWMS and Mamaki Tea
Honestly after just one cup, I am feeling much better now than when I first woke up. In fact you can probably feel the energy of my writing change, from slow and sluggish to zippier with a touch of sunshine! I'm blaming the tea. Wow. OK. Sometimes it's easy to forget how little things, like a cup of Mamaki tea, can help tone the blood and mind pretty quickly.
I am also diffusing Serenity essential oil blend in my room. Ahhhhhh! And had several glasses of water. Feeling tons better than When I woke up.
Now of course I'm feeling much more excited and ready to hit the day. So much for my lazy day? Off to yoga, farmers market and anything else I can get into trouble with today.
We don't have tall buildings where I live but the weather isn't too bad today especially now that my internal heat just dropped by a few degrees.
Well, my detox went great! Needed a few days to cleanse out the system. Just clean eating and lots of water. Nothing too serious but a focus on veggies, fruits and healthy grains. And then my brother gave me a surprise visit last night!
Now that was just fun. We haven't had a real conversation in years and we have always been very close. Nothing changed except marriage, kids, a growing career and very busy life. So the visit was a wonderful gift for God. So many gifts lately. How thankful I am!
One of my favorite easy breakfasts: Bob's Red mill gluten free breakfast blend, hemp milk, nuts, seeds dried fruit, cinnamon, whatever my little heart desires. Some detox tea and lots of water and lemon.
I'm a little slow this morning but it was worth it. To stay up late and catch up with family. Time I wouldn't exchange for anything in the world.
I planned this week as a medical break. All week except for dinner with a friend tonight who is passing through LAX from panama to Oregon.
Until then, my chores are done, little white dog has been walked, brother off to see his family, and I'm off to bathe and yoga stretch.
Well, what a weekend and a week! Last week my MS was creeping toward a relapse. Weak and miserable I slogged through the days leaning on a cane and leaning on my friends for all of their help! And that was before the fair. In fact, at one point on at hursday I was running an errand in town at our local print store, Printefex. And I was leaning on the counter thinking, I could have brought my cane in. Then I see a CHP drive In next door to get lunch, which he did, in the comfort of his car parked right next to mine.
No big deal right? Except I was so wobbly I was walking like I was three sheets under. And I had no cane. How was I to get from this counter to my car without this CHP pulling me over for a DUI? All I can say is his food from Taco Deli was amazing (as always) and he had no interest in seeing me hobble and lean my way to my car. Whew. Two more errands and maybe a twenty minute rest before my marathon tonight with our Christmas in July chamber /City mixer. I'm in charge of the business expo.
Friday, my first night at the fair, I was so wobbly that I had four bottles of water and waited in car until my friends were ready to go. I could clearly here the AC/DC cover band singing Dirty Deeds. All was right in The word. I saw AC/DC live years ago. Brought back fun memories.
The fair was cool. Only 80F. And I got a last minute ride with a friend. And my friend needed some help with the pig. The perfect storm created the perfect weekend.
I helped corral the pig into its pen and we went for some gentle exploration by foot. Slowly and carefully. Then, that evening I got a second wind and pushed through an amazing day with my friends daughter, who is the closest I have to a niece, including mutton bustin, wall climbing and the Ferris wheel! Click here for my day at the fair
Here are A couple highlights from the fair and recovering afterwards:
Meeting inflatable service men, trying to win a gun at the National Wild Turkey Federation, taking a selfie with my girl Izzy on the Ferris wheel, tucking in the Pig for the night and so much more...
After the nice long weekend at the fair, a feat I never would have been able to do until the perfect storm of situations hit, I took advantage of some down time and had a very mellow Monday and plan to have the same today, Tuesday.
With MS it's imperative that when we do activities that we save some time for recovering. Time to rejuvinate. Time without deadlines, without demands and without stress.
I used my oils all weekend. From serenity at night for sleep to MS blend during the day, to various oils to help throughout: lemongrass for my burning legs, melaleuca for the cold sore trying to evolve, to wild orange and OnGuard to get going healthy and strong in the morning. I carry this little container with me everywhere I go. I always have an oil to help!
And time for restorative yoga! I'm really enjoying attending classes at TheraYoga Studio in Montrose California, and took one yesterday to help me feel better.
In addition I made some major changes to diet. Fair food is not MS friendly! I made whole grains, vegetables, salad, fruit and all things natural. Removed some fat, sodium and cheese and kept it clean eating. My body is so much happier today!
This morning I'm sipping chamomile tea with Mamake leaves from Hawaii. Delish and so soothing!
Uh oh. It's morning on a long day and I'm already wiped out! Have a meeting in 30 minutes. Where's my cane? Going to need it today. Actually should have taken it yesterday to doctors appointment but I didn't. Marathon day today!
Tonight is big chamber mixer, Christmas in July, that I've been working on for month solid now. Great event but looking forward to so,some else running it next year. It was the straw that broke the camels back!
I made it through the day and night but this maxed me out. My energy. My health. It's all waning. Time to take control of my health! I see some nice rejuvenation and rehab time in my near future. That's what's keeping me moving right now, Seeing the light at the end of the tunnel.
What's in your diffuser? I be inhaling some Serenity...time for bed!
A good day. Almost forgot a meeting though. Was already to melt into a yoga session and my calendar alert went off. Luckily I had set an alert. Meeting was great but no yoga. Had a few projects to work on. Grateful I did some bathtub yoga first thing this morning.
My body felt pretty good. I didn't drink any caffeine this morning, a good thing for me. I have gone years without it but got back into the coffee habit again. Honestly, I love the taste of black coffee. But my MS and spasmodic torticollis can't stand it. Soooo, time to ease back into only herbs and teas.
The pain in my neck from this spasmodic torticollis is really bugging me. My neck is so tense and tight. Using Some sandalwood EO on the spasms tonight as well as on the soles of my feet. Sandalwood is calming on the nerves. I also used my usual lemongrass EO on my thighs and calves, the sore muscles. It all helps, or at least makes me smell like a Thai restaurant. Actually the oils I use are pure and are not perfume like at all. That's why I can use them.
As for nutrition, well, the day was fine but not really. I had some little baked goods at a meeting (ie including gluten and sugar) and a handful of Doritos (yes, the nasty nacho ones) and then steak dinner with friends and big glass of Merlot (yes, Merlot). Not my usual whatsoever. Granted I had fruit, nuts and cheese during the day, which work fine with my body, but the processed food wasn't a good idea. At least I've had about twenty glasses of LemonEO water since then so I should be pretty clean by now!
Tomorrow is another big day in a way. Several meetings, two of which I'm leading. One is a workshop on reinventing ones medicine cabinet. These are always fun! I'll be sharing oils and meeting new folks. The other is a marketing brainstorm session with a committee I volunteer. And I love marketing!
Bottom line things for us to remember:
- Manage energy and activities
- Manage what We have control over - diet, stress, exercise, friends, time spent
- It is what it is.
- Be positive. It's worth it!
Time to reboot this booty into some healthier living. Had amazing weekend seeing lots of friends, new and old. My MS was acting up horribly and almost fell over numerous times. I'm blaming the heat and doing a bit too much. It was a long week. And the 90F and increasingly warm summer temps are doing me in. Time to spend the day in the A/C and reducing stress load.
Some pics from the weekend. Family, Animals. Friends. They all complete my support group.
I have a few items that need doing today but first, I'm off to do some free flow and get moving. I feel sludgy and slow like the decaf coffee I just drank. And way too much salt yesterday! My face looked like a puffer fish this morning. I took a shower and did so,e bath tub yoga to get started this morning. Now it's Back to water for this girl. Water with lemon oil to help cleanse from the weekend. My hot list for the day:
1. Take care of me. Bathe, reade, yoga, water, healthy eating. Whatever works.
2. Take care of commitments: what must get done today? What can wait?
3. Connect with family and friends. Always.
Off to move this booty...join me!
Yesterday was a tough one for me. It's a been a long week. Mentally in marathon mode I mucked through the week and events knowing Friday would be a down day. And man did I need it! I was so weak I almost fell over several times. I had one event in the evening, retirement party for our minister, and it was tough. Dad wanted to dance. He's 81. I made it barely through one. All I could think about is how drunk I looked and all I had was water all evening. Four bottles of water. I was thirsty! And I had Gumby legs! I definitely felt like a weeble holding on to every table, chair or person I could find.
I had been debating on taking a nap but really didn't want to be up late in the night. So I did an MS battery recharge: lie down in a resting pose, on back, on bed or sofa, wherever it's quiet and not too bright. Using a diffuser and a balancing essential oil (EO), either a blend or a single oil, fall into a peaceful space, calming mind and body. Possibly an eye pillow if it's too light. I also use EOs on the soles of my feet. I used Balance EO blend - one of my favorites for weak and wobbly days!
The mental focus is on recharging the battery. Sometimes I use a relaxing APP on my ipad to play raindrops or Tibetan bells. Actually yesterday I listened to a Native American flute. If my mind wanders or gets busy I bring it back to my breathing. Breathing. So important for managing life with or without illness. I extend both inhale and exhale, filling the empty spaces in my body and relaxing my bones to the floor, releasing to the power of gravity. And if my mind needs activity I visualize a battery recharging in its station, then turn to my breathing.
Tip: Use an alarm so You can relax fully and if sleep happens, it happens. You won't miss your next appointment. Even just a few minutes in this position calms the flare ups and helps preserve the battery.
Before I left for the event I massaged Balance EO into my feet, used Peppermint EO on my legs, and EO blend, aroma touch, on my neck. I was a mess. Weak legs. Balance issues. Tremors in my neck. Pain in my neck. Body sagging tensely to the ground. But it helped! I had recharged my battery as much as possible. Had comfortable clothes on, drank water with Lemon EO in it for restoration and cleansing.
Got home, went to bed. Diffused Serenity EO to calm my nerves further and to help fall into a deep sleep. The night before I had terrible restless legs. I diffused lemongrass EO to help with that. But last night I just needed a solid sleep. I rubbed lemongrass EO on my leg muscles and some Serenity EO on my neck.
Felt much better this morning! When my MS flares up my whole life feels wonky. And today, much better. I needed a day of rest and taking care of me. I did wake to some inflammation. I could feel it in my legs. So decided to use my new White Fir EO in the diffuser and EO Deep Blue Lotion on my calves and thighs. Ahhhh. Relief!
Loving the white fir and how it cleans the air and so much more! I chose it for my pain and for fighting off a cold and fatigue. Diffusing away....
After a restorative night sleep and a restful morning I spent some time with Blue the horse and Daisy the dog. They belong to my friends. I borrow as needed for mental therapy. Today I almost fell over a couple of times with Blue. Just walking around, not riding. Silly gumby legs are still there bu not as bad. Body balance isn't great but if I take it easy today, it will improve. I know that.
I love having my journal back! Here are some quick notes on EOs I've been using. This is probably more for me than you as it's scribble:
My MS Essential Oil Diary
12am. Nite nite.
Orange is new black on netflix.
Long day. Rested.
Club for dinner
Angry. Angry and frustrated. Diffused Wild a orange for attitude adjustment.
1:30 am. Bedtime
Long ass day.
using some melaleuca oil on some odd bug bites I got yesterday.looks like I ran into a spider fest.
played with food in kitchen. made hummus. can sit down in between steps. today my legs feel like what a drunk frog might look like, trying to dance. they hurt. nerves quivering. i was on them too long. we had some fruit that was going bad and wanted to cut it up. it was a push. ready for a nap and haven’t even worked yet…just have one project to work on. that’s enough for this tired girl. fatigue…still not used to it.
Mind games to keep fit. Lumosity for one.
Diffused with OnGuard. Preventing colds etc.
off to feed a friends horse.
Tired today! Long weekend....catching up.
Time to work.
Used balance on feet and neck for a warm day of fun and friends.
Music n the park
Brunch w the birthday girls
Diffusing OnGuard and using on bottom of feet at night.
Diffusing lemongrass to wake up
Played with food
Amazing dinner and BBQ with folks. Cards and wine.
Used basil on legs to help with pain and fire.
10pm lights out.
Legs quivering and on fire. Numbness and tingling left leg. Fingers working intermittently.
Diffusing lemongrass and frank. Putting on soles of feet.
Diffusing OnGuard this morning while working on projects. Some folks have been fighting colds so putting on the defense on.
Woke with a bit of cough and popped some peppermint beadlets. They knock it out right away! Little pops of peppermint. Will also try OnGuard beadlets. Very easy to take and use.
Taking an easy day today. It's almost 80F and only 9am. Going to be a warm one.
Off to take my LLV vitamins. Can't wait for new doTerra order coming soon. New oils and more vitamins!
Oops. Didn't record bedtime.
Celebrating fourth early with friends and family. Overindulged a bit. Slept hard!
Diffused lemongrass during the night.
Had a busy day and diffused lemongrass while working. Really like the clarity it brings often mix it with frankincense.
10:21 lights out.
Orange new black
Made oil business
Bless this family and friends
Diffuse frank. Lemongrass
feeling good. wanting to stay in bed but inspired to hit my first meeting.
morning diffusion with lemongrass and frankincense.
time for motivation and visitation. slow stretching into child’s pose.
Orange is the New Black season 2 @Netflix.
diffused lemongrass & frank.
Vetiver on feet
Business dinner with friends.
Had some leg cramps in the evening - rubbed basil oil on them. cramps could be from new yoga routine/lack of hydration.
Mellow eve. 2w
2:30am. Woke up - eventually fell back to sleep.
Zendocrine on feet.
Water. Wine. Etc.
Whew. Tired. :).
Difussing and using basil. Vetiver
TofR happy hour fundraiser
So tired and inflamed
Wimbledon. Fifa. Procrastination.