Thursday

Race to Erase MS, Nancy Davis, Dr Weiner: Winning!

Time to Erase MS!


For those who don't know about Race to Erase MS, Nancy Davis and Dr. Leslie P. Weiner, well, you have a lot to learn about awesomeness in fighting multiple sclerosis.
Nancy's foundation, Race to Erase MS, not only raises awareness and lots of money but she's finding answers and helping others through her Center without Walls Program. And all of this while living with MS and raising a family.

First off, Nancy holds a wonderful Gala every year to raise money to find a cure for MS. I went one year and it was amazing! I highly recommend it. At $1000 per seat it's not inexpensive but a wonderful opportunity to raise funds for MS and have fun. There are also ways to sponsor and support at all levels.

Race to Erase has also set up an easy way for individuals to raise money for fighting MS. They have a program called the Virtual Race to Erase MS. I just signed up!
I've been deciding which foundation to direct my fundraising efforts from MSontheRoad and have decided on Race to Erase MS.

So why did I choose Race to Erase MS? Because they rock!

Nancy raises money for a program she developed called Center without Walls. While Nancy came from an affluent background and can afford many medical needs and luxuries, she knows there are many folks out there that need help. A lot of help. Thus, Center without Walls was created. Here is some information from their website:

Center Without Walls - Program Overview

"The Race to Erase MS wanted to build a winning team so we sought the best and the brightest throughout the world to create the Center Without Walls program." – Nancy Davis
Funded by the Race to Erase MS, the Center Without Walls program (CWW) has provided support that has permitted the medical community to link together multidisciplinary scientific programs and expertise across the country to advance the understanding of the cause of MS and to develop new treatments. The Center is a break-through success because of the vision, insight and flexibility of these extraordinary doctors.
The Center’s theme is simple: communication – doctors working together toward a mutual goal. When this goal is reached, all will share in the victory.

Partnering with the Best

While Nancy has the illness, energy, ideas and funds to help, she also has the smarts to surround herself with the best of the best. Now we are talking about Dr. Leslie P. Weiner from USC. I had first hand experince with Dr. Weiner back in 2001-2003 during a three-year, double-blind study for a T Cell vaccination. I got to see Dr. Weiner on a regular basis. And boy do I miss that MS intelligence.
But now Dr. Weiner has a new facility with some great staff. Check out the USC Multiple Sclerosis Comprehensive Care Center and Research Group.
I am so stoked about this. I just spoke with Pat, the project manager at the facility. She remembers me from the USC study ten years ago!
I explained my situation. How my diagnosing neurologist retired and referred me to another Doctor who after three years of seeing me told me she didn't have any of my history or medical records. She "treated" me without knowing anything about my illness. Since it was becoming a joke, her inability to treat anything since she didn't know anything, I found a new neurologist. After several tests, time and money, the new doctor said he wasn't 100% sure I have MS and wanted to send me to Dr. Weiner.
Talk about full circle. And why this doctor laughed at me when I asked for a jury excuse. He said I looked great. Since when does looking great mean your MS is OK? I tried to ask him a few question about my tremors, loss of right hand that day, weak legs and balance. He didn't have time. This was after waiting two hours for him! I stumbled and fell walking back to my car. While he ran a litany of tests which I will use, he clearly doesn't understand me or my MS.
Frustrated beyond belief I called USC and spoke to Pat. She is getting me some answers and a new neurologist. I'm hoping to get in to see Dr Weiner if just for a consult after all of these years. He's not taking new patients but I know the others doctors there are all MS focused. We will see.

Bottom line, I'm finally in good hands again!

And because I wanted to, I ordered a cool bracelet to raise money for Nancy's programs.
Nancy is always thinking outside the box and partnering up with some great folks. Check out this group who makes the bracelets CJ Free Jewelry.
And if bracelets aren't your thing, check out the variety of fun fundraising ideas at the shop:
Here's to the folks at Race to Erase MS, Center without Walls, Dr. Weiner, CJ Free Jewelry and everyone fighting to find a cure for MS.

Let's do this!


Tuesday

Win a FREE Cooling Necklace!

 Time for a contest!   

GWMS has partnered up with Nano-Ice and we're giving away a FREE cooling necklace.  It may still be snowing in some parts of the country but summer is just around the corner and it won't be long before it all changes.

Take a photo or selfie of you sporting some orange and #OrangeforMS during the month of March.  Help build awareness and enter as many times as you like.

BUY ONE TODAY!   SAVE $10 and use CODE: ff16 at Check out for $10 OFF and buy one today!




These cooling necklaces are great.  Nano-Ice has a couple of different versions.  This one, with the big, cold balls, packs a significant cooling effect on the body which can be very helpful to those with MS-induced heat sensitivities.    


Click here for other models and colors.
#orangeforMS
Silly sketch 
#OrangeforMS
At my sister's wedding last year.

#OrangeforMS  
Back when I used to kayak - known for my orange, old-school boat.
Martin's Hole, McKenzie River, Oregon  

How do you like to sport your #OrangeforMS?

Share your photo via social media and enter to win a very cool, cooling necklace!  

Enter as many time as you want.  March is MS awareness month.   Let's cover it with folks sporting some orange.  

#OrangeforMS

Sunday

#passiton

March is MS Awareness Month 

Time to do it - time to paint the interface ORANGE with MS awareness and time to pass it on.
Are you on Facebook?  Here's a great way to be orange for the month of March, or longer:  Go to the Facebook portrait filter options and select the MS option.   


You can also #passiton with the following Facebook cover image.  My dear friend took this photo the other day knowing that these are one of my favorite flowers.  There's something so delicate yet remarkably strong that intrigues me.  Feel free to right click and save this image to use with your social media.



Anyway you do it - let us know!    Share your image below or on social media.