The Rocky Ride of MS and What Helped

Multiple Sclerosis is like riding a roller coaster in so many ways.

This past year has shown a lot of love for this Girl with MS.  Some symptoms subdued, others raised their voices.  But top on my list was meeting so many wonderful people living with MS across the country, in person and around the world via the internet and telephone.

Despite my good year and pleasant holiday, the MS reared its ugly head with a bad case of pseudo bulbar affect or PBA.  One minute laughing, the next in tears.  I just call it the funk.  And it got a holt of me bad the other day. 

The fact it's the end of the year caused a bit of the emotions. Focussing on what did not get done in 2019 led me down a path of quick depression.  Even healthy people have to give themselves a break, but the pressure and disappointment that one can put on themselves can be debilitating.  And that's where I found myself.  

You know what helped?  Knowing my new neurologist and his nurse were just a phone call away.  And second, reaching out to all of you, reading your stories and reminding myself that we can get through this disease.  We have each other, and that, my friends means the world to me.  

Here are just a few of the great folks.  They all do amazing work/writing/advocating.  Click on their names to visit their blogs/websites.  This list will be growing!  



with Cathy Chester



with Dave Bexfield

This Group! Amazing folks


with Lydia Emily
with Ashley Ringstaff and Nicole Lemmer 
Nicole Lemmer - My New Normals


with Carolyn Kaufmann

 Carolyn Kaufmann - Without the Weight


with Dr. Barry Singer 
Dr. Barry Singer - MS Living Well  


with Cheryl Hill - marathon runner
Each and everyone of these people are deeply involved with MS.  Most of us living with it.  Such inspiration from all of you.  Thank you and here's to a happy, healthy new year.  May 2020 find you with peace and love and minimal MS junk.

I know there are many folks missing off this list.  It's a work in progress.  Been making some Hoppin' John and it's ready for chow time.  I'm ready and dang, I'm hungry!



#takeTHATms!  


Holidays, MS and Surviving the MS Dictatorship

How did it get to be December? November flew by as usual. As did the rest of the Fall. One of my favorite times of year, the Fall. But then I pretty much love every time of year.
Joshua Tree, CA by Caroline Craven
The holidays can be tricky with MS. The emotional roller coaster, the disease itself, the losses that result. MS is not for sissies. Throw in the holidays and one could have TNT on their hands.
It's easy to get wrapped up in the festivities, duties or even the burdens of the holidays: you're feeling good, things are rolling along and you're getting it done!
Until one day you wake up and, well, start freaking out. "How am I going to get it all done?" The money, the chores, the obligations. It can all be so everwhelming. And throw in an unreliable and random disease like MS and the simplest thing such as getting out of bed can be impossible.
MS is often called the invisible disease. Folks think you look great so you must be and feel great. Nothing could be further from the truth.
I had a lovely Thanksgiving this year but my MS threw me for a couple of loops. The emotional roller coaster seemed unending. Up one morning, down the next. And I mean really down. I don't like feeling that down. Weakness and pain wrecked havoc on my body as well. Hit with a 24 hour bug, the flu like symptoms lasted days and sucked the life out of me. Energy gone, balance gone, I envied the elderly man leaning on his wheeled walker while I held up the wall of the church with my back.
"How am I going to get back to the car?" Weak from the flu, weak from MS, my legs were trembling. I had no cane. No walker. No friend to hold onto. Stealing the last bits of energy, I rallied forth and made it to the car to wait for the family to drive us home. All the time thinking, how am I going to get everything done for holidays when I can barely walk a block to the car?
Oh how I despise this part of the disease: being forced to slow down despite what you may want to do. No one likes to be dictated. MS is a disease that will teach you to live under a dictatorship. But like any life we live by our choices...so what is it going to be?
Here's my game plan for surviving this years MS dictatorship:
  1. Listen to my body
  2. Listen to my MS
  3. Make Priotities
  4. Set limits and boundaries
  5. Be flexible with expectations
  6. Be compassionate and easy on Me
Doesn't look like much but it is. It all seems so simple. So logical. But yet, so easy to overlook when actually living our lives.
Today I'm taking charge of my own MS dictatorship for the next month. One day at a time.
The holidays will arrive whether I'm well or sick, so time to do this right and get on with life. Time to manage my MS like an iPhone battery: to conserve and preserve energy to maintain quality of life with MS.
Off to get the day started and take my own advice!
Let's do this!

I posted this originally a few years ago, but it rings true every year, except for the flu.  Whew!  No flu this year!

Finally, a New Neurologist... And I am Psyched!

“Caroline,” he called.  “Caroline” 

He looked like the photo on his website.  

Wow, the doctor is calling me in for my exam.  

“I’m impressed by your service,” I said. 

“We do things differently,” Dr. Shubin replied. 

And, boy do they!  

Upon entering the office I could see plenty of MS information. I even found myself on their table!  

PBA - an effect from MS & emotional rollercoaster 
It all started with a frustrating doctor visit a couple of months ago.  My neurologist and I did not communicate well.  Feeling intimidated and second-guessed, I started doubting her expertise.  Not a good place to be. Years are gathering and I am getting older. Fears of what might happen with my MS are rising.  I was scared.  

But, not now.  

Just one doctor visit gave me so much confidence. He said there is a place I can go, Casa Colina, that is famous for rehab.  They even have driving machines to help you learn to drive again. Could you imagine?  Being able to just hop on the freeway and go where ever you wanted with out paying for a ride share?  Or bothering friends or family?  Imagine the freedom and independence. I’m tearing up just thinking about it.  

Dr. Shubin covered so much and gave a thorough exam. Despite the years of neurology appointments it’s been way too long since one has given me a proper exam.  Not since my diagnosing neuro retired.  

We talked about life, how MS is working, he made it so easy.  I am still in awe over the experience. I have had doctors tell me they don’t know what’s wrong because I don’t’ “present”.  

We talked about disease modifying treatments and opened the conversation for later discussed.  

Wow.  

About to meet my new Neurologist! 
Just feeling the love from his office.  It was the best experience since I was diagnosed.  The love and care is amazing.  The expertise and knowledge is utmost.  This is quality and I’m feeling even more ready to conquer MS.  

Join me in my battle.  Let’s conquer MS together!  



#takeTHATms!    

Talking High-Dose Biotin with Dr. Aaron Boster

I saw this great tweet by Dr. Aaron Boster the other day and I couldn’t stop laughing. 

Dr. Aaron Boster

Yes, this is what high-dose biotin can do.  What’s even better is what it can do for MS, at least for mine.  

My annual physical was coming up.  

I had one instruction:   Go off my high-dose biotin for a few days before blood work was done.  Last year my thyroid test showed a false result. 

Research has shown that high-dose biotin may provide a false positive result for the thyroid and it is suggested to go off the supplement for a few days to a week prior to the test.  

Many of you know that Myetin, a high-dose biotin with NAD+, has been part of my regime for about a year and a half now.  After taking it, I found that my energy increased and my pain and spasticity reduced.  It also seems to help keep my cog-fog at bay.  These are three things necessary for me to function at my best.  

Not as much hair as Dr. Boster, but it’s getting there!
But the fact was, I was scared to go off of my Myetin.  Everything has been working really well these last couple of years with regards to managing my MS symptoms.  I did not want to change a thing!  

What if I relapse? 

I was freaking out.  And I was traveling across country for a bunch of MS advocacy work.  I could not afford a relapse.  I couldn’t even afford to not be on my best game possible.  Due to some weird regulation I am not allowed to talk to my doctor outside of appointments and relaying messages via a nurse did not instill confidence in me.

So, stubbornly, I did not wash out the drug before my blood work.  

Interestingly the results showed normal thyroid activity this time.  



Enjoying life when I can. 
My interest was piqued. 

I spoke with the folks at Avior Nutritionals (maker of Myetin) and was informed that taking the supplement does not guarantee a false thyroid test but it can happen. 

Unfortunately my lack of conversations with my neurologist did not lead to confidence on my end.  So, I went to a leading expert on MS, the much-loved Aaron Boster, MD from Ohio.  

Dr. Boster is not familiar with Myetin, but as a practicing MS specialist is quite aware of the potential benefits of high-dose biotin.  

Boster, who has worked with thousands of MS patients in Ohio, has over 16,000 subscribers to his YouTube channel, and is quite active on social media.  His regular videos on MS are insightful and smart creating a great resource for those newly diagnosed and those living with MS for years.  




High-dose biotin is showing promise

“The preliminary research is so compelling that I will routinely recommend high-dose biotin,” Dr. Boster said. 

Benefits are showing potential in slowing disability in those with progressive MS, as well as slowing brain volume loss.  It may also have “re-myelinating potential. “These are very important things to do,” said Boster.  He further explained that high-dose biotin is a very safe compound to take and has not shown any risks to date.  

“There have been some large, properly designed clinical trials designed to answer the questions of the benefit and risks. But the jury is still out,” explains Boster, “the research needs to be replicated.” 

Clinical trial results pending  

A multi-campus clinical trial involving 642 people with MS is looking at the efficacy of MD1003, a form of high-dose biotin, in disability of those with progressive MS, especially gait issues. This double-blind study includes 92 facilities and recently wrapped up data-collection. Results will take time to process but I’ll share them when available. 

When I told Dr. Boster about my failure to comply, he expressed his concern. (Which is just what I needed!) He explained that thyroid tests use biotin in their assays, and by not washing out my system, I may not get honest results.  

We talked about the emotions of changing routines, fear of relapses and then focused on ways to gain confidence. The partnership between patients and doctor is vital in this confidence. I am grateful to Dr. Boster to be able to have this conversation.   

“I don't recommend high-dose biotin for everyone,” said Boster, “but if a patient is interested in preserving the brain reserve, managing brain-volume and slowing progression then it’s a conversation to be had.”



Not always easy, but I keep at it. 

Doctor Patient Partnership

This experience reminds me of the importance of a good working relationship between doctor and patient, a true partnership.  I obviously did not have one and have since found a new doctor.  I have not seen him yet but the MRI is scheduled and so is the neurology appointment.  I’m psyched.  

Thank you, Dr. Aaron Boster, for helping me better understand the potential for high-dose biotin. And the importance of having confidence in managing my MS with my neurologist.  

Thank you, Avior Nutritionals, for sponsoring this post and for supporting the work of those living with MS.  

Click Here for more information about Myetin (affiliate link)
#takeTHATms!   

Moving Forward with MS

I am blessed to share my MS story.  Please note this post represents my own opinions.

When MS first hit me, it hit hard and fast.  I couldn’t walk or see unassisted.

Today, I am thriving.

These last twenty years have been quite a journey, containing frustrations as well as accomplishments.

Flare-ups still occur and managing my MS is a full time job.  But, I have found some tips and tricks that can help everyone.

New MS Guide

AND, the National Multiple Sclerosis Society just released a comprehensive guide, “Now What? Resources to Keep You Moving Forward with MS,” which is amazing.  I sure wish it was around sooner!  But it’s here now and boy does it have some great tips.  No matter how long one has this illness, there is always something new to learn.  Growing and learning are all part of the moving forward process.



Creative Outlet

One suggestion the Society talks about is finding a creative outlet, such as painting, photography or writing.  This is so cool, because this is the path my life took without consciously knowing about.

My career as a business executive ended when I got sick.  Time to re-invent myself.  During this time I picked up a camera and started playing around.

Interestingly, this action made a HUGE difference with my MS.  The focus and attention required for the photography helped me forget about the MS.  The hand-eye coordination helped my brain and chasing wildlife made me smile.  Win-win in all areas.

My adventures led me to Africa and the Galápagos Islands, among other places.

These are some of my favorite photographs.  They are all a result of patience.  Waiting, being still and quiet, breathing deep, finger on the trigger ready to squeeze.

I swear, this saved me in so many ways!

In Ecuador atop Colorado 

Galápagos Islands: Patience for the Petrol 

Maasai in Tanzania: three planes and one relapse later... 

Tanzania: Fearing for their safety, the herd finally settled down just long enough to grab this shot.

If you would like to see more of my photographs please visit this link.

Moving Forward

In order to keep thriving it’s important to keep moving forward.  I still love photography but now I want to try something new. I’ve dabbled in drawing and painting so decided to try one those nice paint by number kits that are growing in popularity.

In fact, I am using this photograph of one of Darwin’s finches in the Galápagos Islands.  I am so excited. I’ll keep you posted on the progress!

Galápagos Islands: Female Cactus Finch
Thank you all for being such a wonderful support for me.  I’m excited to hear what you think about the new MS guide from the Society.  I’m finding it quite helpful!





#ThisisMS 

10 Ways You Can Prepare To Age Well With MS

By guest writer, Anita Fernandes.

Everyone has to make lifestyle changes as they age but for people with multiple sclerosis, this will mean a lot more adaptations and adjustments.
MS often causes “accelerated aging” where you need the kind of care given to people in their 70s while you are still in your 50s. Preparing to age well with MS will help you anticipate and overcome the challenges you will face so that you have a healthier and happier life. 
1. Create a daily routine 
Everyone should have a regular daily routine but when you have MS, your schedule is your best friend. Pushing yourself even slightly can cause fatigue so your daily schedule should focus on conserving energy. For instance, you can use a bath bench when showering so that you don’t get tired. Your morning routine is the most important as this will ensure that you are not too tired and have a better chance of having a good day. A regular routine also lowers your stress levels and improve your mood. Studies show that a positive mood is associated with decreased fatigue. 

Caroline @thegirlwithMs on one of her walks.
2. Learn to adapt 
One of the toughest things about living with MS is accepting that you have limitations. Most people see this as a loss of freedom and so they make choices that have a negative impacton their health. For instance, if heat aggravates your symptoms, you will have to say good bye to your weekly warm soaks. Instead, you can treat yourself to a massage which would be as relaxing and will help relax your muscles. Adaptability skills are very important as progression will bring with it new symptoms. 

3. Never skip your follow-ups 
You may have a lot of reasons to skip your medical appointment – you’re having trouble walking, you don’t have anyone to drive you to your appointment or you are just plain frustrated and fed up. Skipping your follow-ups will have a negative impact on your health and MS symptoms so this is one of those times when you need to force yourself to move. Contact your city office and find out if they offer free ride services for people with disabilities. 

4. Prepare for Progression
Hope for the best, prepare for the worst – cliché but true. One of the best ways to prepare for aging with MS is to prepare for progression. It’s never too early to start researching accessible housingassisted living and adaptive driving. Today, there areplenty of resources for information on aging with MS – everything from home care, transportation, in-home services, home modification and general legal services.

5. Learn to prioritize 
Living with MS requires you to focus on managing your symptoms and you might sacrifice activities that are “not essential” but improve your quality of life. Your health is a priority but hobbies and activities of interest are also important for your mental, emotional and physical well-being. Determine your priorities and then decide which tasks can be delegated to family, friends or helpers. Schedule your day so that you can perform important activities when your energy levels are highest. 

Caroline and Tim visiting the “Wall” at Reagan Library. Do what you can, when you can!

6. Start a health and wellness program early on
Health and wellness programs for people living with MS help people improve their mental and physical health. You can choose from a wide variety of adaptive exercise such as dance, aquatics and yoga. MS Focus offers several free classes or partial or full funding for gyms and wellness centers if required. Health and wellness programs help to reduce the stress and frustration with your limitations and instead appreciate all the things your body can do. 

7. Seek and Accept Help
People with MS are often embarrassed to ask for help and don’t want to impose on others. This is a huge mistake as it can severely impact your health and quality of life. Seek help and assistance as this will completely change your lifestyle and improve your mobility and freedom and allow you to enjoy a wider range of activities. 

8. Give back 
Living with MS requires help and assistance from family and friends. This can make you frustrated and guilty as you start to feel like a burden on your loved ones. Figure out ways in which you can help them as well as give back to your community. This will help you deal with negative thoughts and emotions and improve your self-worth. 

9. Work with a psychiatrist or psychologist
MS is associated with various psychiatric comorbidities including depression and anxiety. MS and mood disorders can cause a vicious cycle where MS leads to psychiatric comorbidities and these disorders have a negative neurologic impact. Working with these mental health professionals will help you learn new coping techniques to ensure good quality of life as you age.  

10. Keep a Positive Attitude
Living with MS means dealing with pain and frustration on a daily basis. Keeping a positive attitude when you have MS can be quite the challenge, especially on bad days. However, it is important that you don’t give in to negative emotions as this can lead to mental health issues. Your positive attitude will go a long way in helping you age well with MS. 
Simple steps like a regular diet, sleep and exercise schedule will help to alleviate your MS symptoms. When living with MS, it is important to work towards overall health and wellness as this will let you lead a more comfortable and happier life. 


That moment when I had to say hi to the beautiful and talented Jennifer Tilly.


Thank you @Everydayhealth for providing this wonderful article by guest writer, Anita Fernandes.  


Author Bio -Anita Fernandes has been writing extensively on health and wellness for over a decade. She has expertise in nutrition, fitness, public health, and weight loss and has contributed content to a variety of leading digital health publishers. Anita has a unique perspective on healthy living and lifestyle, as she has battled and overcome eating disorders and obesity. She shares her experiences in an effort to help others overcome the physical and mental health problems that can sometimes seem insurmountable. 

Rocking New York City with Multiple Sclerosis!

I just made my first visit to New York City since 9/11.

Emotional, exhausting and empowering.  

The multiple sclerosis was managed but it took hard work and plenty of preparation.

Final result:  Live TV shows promoting brain-health and MS awareness.


Traveling with MS can be a nightmare, even with the best intentions. 



It’s best to have a well thought out plan “A”, knowing the whole time that most likely plan B, C or D might come into play.

We started off the trip with some MS advocacy work... my favorite!   Celgene is introducing their new #MSmindshift initiative and I love it.  Spot on. It’s all about brain-first thinking.  MS affects the whole body but the damage is done in the brain and spinal cord.  For now, I’m focusing on the brain.

My friend and fellow MS advocate, Cathy Chester (@CathyChes) was there along with her husband, Gary.  Total blast.  Laughter, fun, sillliness and seriousness filled our time.



 Click Here for more information about MS MindShift and Brain First thinking.


Plan B it is 

The plan was to spend the day in a hot air balloon.  But, just as with MS, life is unpredictable.  Especially the wind.  So, Plan B it is.

And let’s just say that Plan B can often be total baller.  Best not to have expectations for any of the plans because something really cool may just show up.

Today it was a private yacht trip to the Statue of Liberty.  No one else on the water and the weather, while breezy, was gorgeous.

The next day was packed with a satellite media tour in the morning and then...ahhh...back to bed!

First morning was a 3AM wake up call.  The next was 5AM and the next 4AM.  After traveling cross country. Thankfully, we were on Alaska Air, which knows how to take care of their customers, especially those with MS.

The media tour was fun.  I absolutely loved it - sharing my story to help others.  I could do this all day long... well, maybe at least for a few hours.  Here is my very first ever live TV interview chatting up about MS Mindshift, “brain-first” thinking and what its like to live with MS.


Click HERE for live TV interview with Caroline Craven, the GirlwithMS

I love what I do, and can do it because of my friends, support and especially because of Tim.  He is attentive, caring and takes care of me better than I do.  We all have our strengths.  My forte is not taking care of myself.  I have had to learn, train, practic and form healthy habits in many ways.  Like, slowing down and taking breaks.  Tim can see when my MS is acting up and will interfere so I don’t over do. He attentiveness is helping me stay focused on whats best for my MS.


Couldn’t do this without you, honey!


The tour of 9/11 brought about emotions not felt in over a decade.  My MS was really bad when 9/11 occurred and the images from the original film footage came up like a splinter and stung hard.  Vulnerable, raw, emotional, I was a mess.  Snapping at Tim for no reason, except for feeling like a veal chop pounded wafer thin, ready for the broiler.




Then we toured the Empire State Building with Rubio, An informative, enthusiastic and passionate guide.  AWESOME tour!







And,  HERE are my tips for traveling with MS:

1.  Plan your trip.  We studied the map and made general ideas of what we wanted to see.  As the trip got closer certain reservations for tightened up.  But within each day were hour long blocks of nothingness.  Spots for rest, rejuvenation and restoration.  

2.  Prepare:  I spent a week in Lake Arrowhead prior to NYC.  This meant quiet time, me time and time to get my work done.  No one else’s agenda mattered except mine. This is not easy to do but it worked out well for this trip. 

I have a tendency to lose weight while traveling. This was never the case prior to MS. But now I need to calorie load beforehand.  Especially for a trip like NYC which had long days and plenty of walking.  

3.  Wardrobe:  Check out the weather and layout your wardrobe.  With MS, especially in the warmer months, it’s important to dress in easy layers that can be shed as necessary.  Even more important if you are a middle-aged woman.  Organize outfits for each day and make notes of them. This can be so helpful when the MS blahs rear their ugly head during a trip.  

4.  Nutrition:  Anti-inflammatory foods help me the most while traveling.  Green tea, lots of water, lean proteins, cheese becasue I’m a cheesehead. And watch the dangers:  too much salt, processed foods, quick fixes like caffeine and alcohol.

5.  Check out my blog post about brain-restoration; Click HERE to learn a bout brain restoration, sleeping and MS

6.  Most importantly - have fun and smile!

Even if youre tired as heck, try to find that smile deep within and share it with others.  It’s contagious and viral in all the good ways.

We had the opportunity to see. Oklahoma! On Broadway thanks to Jamie DuMont and Rick Miramontez.  What a show.  I am still smiling and dancing inside.  Just what we needed to wrap up an amazing week in New York City.



We also got to meet up with my big brother, Bruce Craven, at Marea’s Restaurant. Bruce recently published his latest book, “Win or Die, Leadership Secrets from Game of Thrones.”   I highly recommend it!



Remember guys - we’ve got this!


#takeTHATms!  



Emotional Hangover from MS - and what to do.

The MS got a hold of me, worse than it’s been in months.   But there were reasons.  Pushed beyond comfort by demands of life, it caught up with me.  And caught up bad.   

Often we talk about the physical pain of MS, the tremors, the spasticity.  The pain the comes from every nerve ending or the fatigue that covers us in a lead blanket.

And then the pain wanes and we feel better for a bit.  But the emotional sludge that remains behind is detrimental to our health and happiness.  

And boy did I feel it this morning when the day got started.  Frustrated, irritated and angry at life, my legs crumbled their way out of bed to get some coffee.  Crumbled for sure as there was no jumping for joy today.  



Why my?  Why this damn MS that suffocates me and keeps me jailed up in my body?  

Sure, I aim for happiness.  Positive thinking and all is great an my focus.  But today, I’m not going to fight it.  My emotions are way over the top upset and there’s no denying that I really I despise my MS right now.  

Unfortunately the angrier I get the more worked up my MS becomes.  This isn’t productive or healthy for anyone.  
Time to force a change! 

Yes, I’m using the word force.  Enter something beautiful in life:  A sit in the garden.  A chat with a friend.  A stroll through the neighborhood.  Find the beauty, grace and appreciation that is the bases of life.  It’s there but when I’m this worked up it’s hard to see beyond the tears. 


But forcing this is easier than it may seem.   Just sitting out in the garden for a few minutes is helping.  

BREATHE DEEP EXERCISE
1.  Breathe in deep to the chest.  
2.  Take the breath deeper, into the belly and gut and let it distend out as far as possible
3.  Keep taking in more air, aware of the beauty around you. 
4.  When full of air, sit a second then exhale deep.
5.  Exhale through the mouth, letting out everything dirty, angry and evil. 

Repeat! 

Ahhhhh...  Feeling so much better already.  

Now, to remember this trick during the busyness of the day.  


Now that I can see straight and am calming down, time to record my issues.

Even after almost 20 years of this illness, I am still learning about it.  Today was a lesson learned.  AFter three days of physical hell, the emotional hangover was even worse.   Next time my body faces exacerabations from mismanagement I must remember this tailing wind of emotions that have entwined me.


Win or Die: Leadership Secrets from Game of Thrones

Game of Thrones for MS

Well, it’s a wrap!

Our Game of Thrones party is in the books.


My brother, Bruce Craven, recently wrote the book, Win or Die: Leadership Skills from Game of Thrones.

Bruce is a professor at Columbia University as well as director of their executive education programs.  Before graduating from Columbia with his MFA, he was a banana slug playing frisbee at UC Santa Cruz studying literature and political science.



He is in amazing big brother.  Always there for his family and friends.  One true gem of a man.

Containing many valuable tools, his book provides insight on the priorities people place on their values in chapter 2. This chapter resonated with me to the point that a change needed to be made.

Time to adapt!

As I try to balance my MS with my life, I find that the need to set boundaries becomes increasingly important to my health.  But setting boundaries are not as easy as one might think.  There are other people, emotions and feelings to consider.

When reading about values and priorities in Win or Die, it struck a chord.

While many of us may have the same values:  ethics, honor, family, life, honesty, etc., we may value them differently causing discord in communications and expectations.

So my mind started wandering and created a priority of values that drive me.



My values and priorities:  

1.  Treat everyone as you would want to be treated.  Smile at everyone.  Make eye contact. Show respect.

2.  Be resourceful and watch waste.  Food is designed to be eaten, composted or shared with others.  All of it.  Respect the plastic - respect it man!  Soil, water, sunshine.  It’s all a blessing not to be taken for granted.

3.  Take care of yourself.  Eat well, exercise, enjoy the outside, smile at yourself and others. Own your health and own your excuses.

4.  It’s not about the money.

5. It’s about sharing the love.  Principles, lessons and such have their time in the sun.  They will continue but let’s remember what’s important.  Kindness and love to all.

6. It’s also about living a productive life, helping others, providing good services, being honest and upright.

7.  Make smart choices with consumer dollars - do not expect laws to dictate what you purchase. Put your money in your beliefs.

8.  Do not waste time.  Time is the most valuable thing in my life.  With it I can enjoy family, friends, nature, and helping others.

9. Create a safe place for you, your friends and family.  Safety in expressing values, priorities and personal thoughts.

10.  Take actions that result in smiles.  Do not harm anyone or anything.  Be kind.

What does this have to do with MS?

Oh, so very much.

By better understanding my priorities and those of others it makes life easier.  It definitely makes boundaries more effective.

It all starts with communications.  As we better understand ourselves, use these insight to help understand others better.

I never watched GOT until my brother was writing his book.  But when I started, boy did I learn a lot.

“It’s what we learn after we think we know it all that counts,” says my former riding instructor, Jimmy Williams.  And it resonates today.

Keep learning.  Use it live a better life with MS.

And know that, we’ve got this guys!

#takeTHATms!


CLICK HERE to Purchase your copy of Win or Die.

I do make a very small affiliate fee for each purchase.