Sunday

MS Nurses in US!

For awhile now I've been reading about the MS nurses available in the UK and other countries, someone we can call for support and questions about multiple sclerosis. Well, we now have them here! Thanks to Genzyme corporation, maker of Aubagio, we now have access to MS nurses via their new service, "MS One to One". Click to sign up.
I learned about this program on my recent adventures in Chicago where I worked as a lifestyle expert at a seminar for Aubagio. (More on this later.)
Today I received this email about the program:
"Hi GirlwithMS,


We’re always on the lookout for helpful services that could benefit members of MyMSTeam. We recently learned about MS One to One®–a free program from Genzyme that lets you speak directly to an MS nurse during regular MS One to One call center hours–Mon—Fri 8:30 am—8:00 pm ET. In addition, there are also on-call MS nurses 24 hours a day, every day.
You can register for MS One to One even if you’re not on a Genzyme treatment.
We receive financial compensation from Genzyme to let you know about this program. It’s one way we keep MyMSTeam free while letting our members know about useful services. "
Man, I sure could have used this program 14 years ago when I was first diagnosed. Especially with all those newly diagnosed questions. But I could use it today for much needed continual support. So, I signed up.
You can even have a nurse call you and check in on you. How cool is that?!
So many features to engage in...check it out

Tuesday

Escaping the "Red Zone" of MS

Sometimes this is not very easy to do, keeping your clothes on, with MS. Summer months are brutal and just hiding out by the AC doesn't cut it for most folks. Planning ahead with cooling devices is best but sometimes we simply wake up in the "red zone", inflamed and sensitive, a red flag for a relapse.

When I'm in the Red Zone the first thing done is to rate the shade of red. Am I getting a little pink or have I fried myself?

And then ask myself why?

  • What did I do yesterday?
  • What did I eat?
  • What was the temperature?
  • How did I sleep?
  • What's on my agenda today?

What can I do now to move into the "Blue Zone"?


Hanging by water is a great option. Pools, rivers, lakes, oceans provide instant relief from warmer temperatures. But not all of us have this opportunity nor can we often remove our clothes to cool off so improvise we must.
Quick tips:
  • Cool shower. Even Luke warm is fine. Just hop in the shower for instant cool down.
  • Wet bandanna around cooling points: neck, wrists, ankles
  • Ice water, drink it, pour it on your head, pour it down your shirt!
  • Wet shirt, cool off body. Huge help in the Sahara when my guides put my shirt in the crocodile infested waters so I could cool off. They don't have ice on safari in Tanzania, FYI.
  • Juice it! With Cooling, anti inflammatory and detoxing foods such as cucumber, apple, pineapple, etc.
  • Visualize the Blue Zone:
Ahhhhh....feeling cooler already. Now, not to mess it up.
 
That means to watch diet and activities all day:
  • Cooling foods
  • Activities by AC
  • Water, hydration
  • Reduce stress and get those items checked off to-do list
  • Have fun brainstorming on some new projects
  • Find balance
  • Be at peace
  • Mellow in the "Green Zone"
So, How do you deal when you're in the Red Zone?