#passiton

March is MS Awareness Month 

Time to do it - time to paint the interface ORANGE with MS awareness and time to pass it on.
Are you on Facebook?  Here's a great way to be orange for the month of March, or longer:  Go to the Facebook portrait filter options and select the MS option.   


You can also #passiton with the following Facebook cover image.  My dear friend took this photo the other day knowing that these are one of my favorite flowers.  There's something so delicate yet remarkably strong that intrigues me.  Feel free to right click and save this image to use with your social media.



Anyway you do it - let us know!    Share your image below or on social media.   

Love and Multiple Sclerosis - finding peace

Camelia Peace Heart Descanso Gardens


Love and MS

My most recent article about living with MS, "Loving Yourself Can Help You Battle MS". Found here at Healthline.com

I'm in love with writing these days.  It is so interesting how life takes us down turns and roads and rabbit trails.  That is how writing became a part of my life. Writing is a cathartic release for so many people with chronic illness and MS.  Even if one doesn't want to do it professionally, the use of blogs and journals can help alleviate a lot of stress as well as offer guidance for others.

Garden Visitor
In saying goodbye to February, I find myself reminiscing about activities and accomplishments.  It seems that with MS the ability to spend half o f our lives on the couch can be overwhelming and suffocating.  It's good to look back and realize, hey, I actually did some pretty good stuff this month. And you know what - that feels awesome!

AWESOMENESS of FEBRUARY:

Anemones Descanso Gardens 
  •  Ate healthy
  •  Saw several friends and greatly enjoyed our time together
  • Spent time with Family
  •  Went to several social outings
  • Yoga practice continuing strong
  • Getting things done - Even though my desk looks like this:   Work is not bottlenecking much in my area.  Making calls, filling, taxes, all of it.  Touch it once and get her done.  
  • Wrote several new articles on MS and had them published.
  • Wrote a new budget.  Doing some serious savings and wanted to make some adjustments.  You may now how this feels. It takes some major priority setting.  
  • Medical - making appointments,, even the annoying poking and prodding ones. 
  • Wrote letters.  Sent notecards to friends.  Smiled while doing it.  Enjoyed the process.  
  • Spent time in the garden.  Both mine and Descanso Gardens.  
  • AND Helped out at a children's fly fishing clinic at the Pasadena Casting Club.  Absolutely loved it.  
  • Showered myself with love using positive words and feeling despite the fact I was a gloomy guss all month.  
Pasadena Casting Club Children's Clinic

All in all, made some good memories and am quite grateful.  Of course with MS, these memories may fade very quickly, but at least they are here today to enjoy.

What are some of your memories?


hiking behind my house #lcftrails
#takethatMS

Inspiration! #takethatms





My favorite meditation app:  Calm (click here to download). Love this tool to help manage the stress of life each day. Just 10 minutes a day. Sometimes meditation takes place in the bath tub where it's quiet and peaceful. And safe from interruptions.

 

Afterwards I often enjoy a nice cup of mellow, calming tea.  My nerves are always a bit frazzled with MS and the tea is greatly appreciated. 

 

Homemade bath salts take the event to a whole new level... 
 
Just ten minutes a day can change your life. 

What's your favorite way to take the edge off? 

 Try it. Talk to me. We've got this! 

#takethatMS



The little things and the not so little things...

Yoga, walk, shower, tea...I love mornings. Well, sometimes. They may be slow or painful, but as long as they keep coming, I'll take them. So random this MS. Yesterday was a tough day. Legs on fire, tremors a trembling. Energy, attention and focus was channeled for four hours of meetings. Then honestly, I was done. Sipped water, nerve-calming tea, and watched quiet, innocent television as my eyes were too tired to read. When the sentences start leaping off the page you know its time to stop.



I just couldn't take anymore interaction. Anymore sound. Anymore energy taken from me. I know my boundaries. I know that if I over do today I'm done for tomorrow.
This morning was completely different. Strong. Balanced. Calm. I practiced my morning yoga on the circle, accompanied by two dogs, overlooking the Arroyo. Followed by a dog walk and now sipping some tea. Basically, a gorgeous morning at a local retreat.
What causes the difference from one day to the next?
"No two the same." But how can we better manage our day to day life?
Everything adds up. Diet. Activity. Energy. State of mind. Stress level.
While I had been eating some needed calories and tasty food, the recent increased consumption of red meat, processed foods, caffeine, salt and gluten brought extreme inflammation to my whole body. In addition, I pushed myself last week at Hot Creek. Even though I was managing every aspect, it took a toll.
At Hot Creek, I found if I could "mind shift" into other states of mind, I could better manage my MS. In order to do this, I did quite a bit of resting poses, some yoga flows and meditations to work through the fatigue, clumsiness and nerviness.
Then I returned home to hours of meetings and tasks I wanted to get done but my body started to shut down. But this time I didn't turn to my mind shift options. I turned to Caffeine! Ugh and horrible I know but the coffee was flowing and so was I. Until I crashed. And crashed I did.
One bad choice and I paid the price.
I was talking to a good friend the other day about how I felt my bounce back has been improving. While I keep this image in my mind, heart and soul, I also acknowledge that I'm doing less and less at times. I feel its a continuous struggle, finding that balancing act between too much and not enough. Making every right choice or just being human.
Many folks want to write off my MS as returning to a mild form. Well, Its returning there for a reason.
YOGA. I can't say it loud or strong or often enough. The one thing that has worked better than anything other than my three F's (Faith, Family, Friends). YOGA.
I started way before I had MS. Not serious but got the basics. I continued throughout my MS. From physical to mental balance, everything could and does improve with my practices. Some days I can't stand too well. Others I'm balancing on one foot.
As long as I keep waking up. As long as I keep my Faith, Family and Friemds. As long as I watch my diet, my life style and embrace everything mind body and soul, them can I continue living. Yoga. Nutrition. Support. Food as Medicine. Vitamins, herbal supplements. The list goes on. Start with the basics and work the others in.
Maybe I can still walk because of the yoga and exercising. And because of all the minute details I manage. Some days I can't walk too well and I will fall and trip. My legs just now started to feel a little twangy so I poured a glass of pineapple juice. The bromelain is a natural antiinflammatory. It just sounded like to right choice.
"No two the same". Whether we are talking people or days. My goal, every day, is to manage my symptoms so I can have more consistent days.
So here. Here's to the three F's of Faith Family Friends. Here's to Yoga! Here's to trying everything, finding what works for you and for creating an MS plan that will help you live a more fulfilling life.


Bee pollen, herbal tea and red wine

I find it fascinating to look back at old posts and see what I was working on and how my MS was doing.  I haven't taken clonazapam/klonopin in years and so thankful to be off of this horrible drug. Hated being on it!  Don't miss it all.  Intereesting to read effects of going off it because never even think about it now.  And so many folks with MS are prescribed this drug for symptoms.  Be careful with it. My supplements have changed quite a bit over the past 4 years along with other bits of this post, but it's intriguing me to read it and remind myself of things that have worked in the past.

Original Post from March 3, 2013:

For the last few weeks I've been reducing my klonopin ever more as I head toward my goal of being off this drug. My doctors say I can take three pills a day. I wouldn't be able to function as it makes moshy pit head syndrome. For the past year I had been taking a half of a pill at night and then another half when I woke up around 3 am. Then slowly reduced it to a 1/4 pill at night if I feel the need. Supposedly klonopin needs to come out of ones system slowly especially if one has been on it for years as I have. A sudden stop could cause seizures. Ironic since the drug is an anti seizure drug. But for now I'm taking a 1/4 of a pill once a day or a couple of days.
What's amazing is the amount of short circuitry and nerviness that has increased since I've reduced the klonopin. Talk about tingling me silly. I swear there is a conversation going on between my left knee and right thigh. Well wait. Actually it now seems like there are a dozen different nerve endings all standing on their soap boxes, shouting at the top of their lungs, "Me! Me! Me! Choose Me!"
But I'm sticking with my plan. I will be off this drug.
In the meantime I'm finding peace with herbal tea, bee pollen and red wine. In fact I'm drinking some Chinese detox tea, Trader Joe's mint tea and bee pollen as I write. My friend just turned me onto bee pollen so this is day one. Here's some info on it: http://www.mercola.com/article/diet/bee_pollen.htm
In addition I'm drinking my shentrition (getshen.com), taking my vitamins and massaging coconut oil all over my body. Coconut oil is amazing and seems to heal all that ails. Here's my cheat sheet of supplements:
Wine is a supplement? But drinking isn't good for MS is it? No, not really. Alcohol is a toxin and heats up an already MS-inflamed body. So why do I add wine to my list? A glass or two not only tastes great but there are some health benefits to red wine and it is nice to take the edge off now and then. And to take the nerviness down a notch. I am no doctor but have lived with this disease for twelve years and this is what works for me.
What also works is falling head first into a bottle with good friends and family. Been there many times. So, I'm not perfect. Who is?
Life is about living and exploring. Not hiding under the covers.
Today is Saturday. I'm off to thrive in the garden! What are doing to thrive today?

My MS journey in a nutshell


Multiple Sclerosis (MS) hit me out of the blue and slammed me down hard.  It tried to take my life. That was 15 years ago and it has been quite a journey to wellness. Tragedy creates a deeper relationship within ones self, stripping one down to a raw, childlike state of survival.   My focus shifted to the bare basics of survival making each day an accomplishment.  Life wasn’t going the way I planned:  It was time to stop the whining, put up my dukes and find a way to figure it out. 

Changing my way of life was the only way to go:  Time to slowdown, to become the tortoise and not the hare.  Time for some finesse.  Time to be kind. Always one to enjoy life and look at the rosy side, it is imperative to be true to yourself.   Forgiveness?  Blame?  Grief?   So many emotions to discover and explore.  Some fun, some not.  Sit down, hold on, and take this ride for all it’s got to give.  Life with MS is ever changing and not predictable in the least. With a shift in attitude and new tools, life can be better with MS.   Follow me @thegirlwithms or find me at #takethatMS. 

This photo captures and says so much:  the hidden figures, the potential of life, the colors and reflections of the trees and life surrounding.   
#trout #whitewater #california #takethatms

New Intentions, the power of the Moon and right Choices

New Moon coming in 2 days, 6 hours.   What are you going to do to take advantage and say #takethatms?   Here is a post that reminds me to make a plan and do something different.

A few weeks ago a full moon graced our skies. I could feel the energy building. The strength was overwhelming. Frightening. Oh how I've loved to howl at the moon the past. To sit on the barn roof and fall into its power. But it's also a time where I can over do. Over indulge in food, coffee, wine, anything not necessarily good for me in quantity. Add a women's hormones into the mix and well, sometimes it's best to heed the warnings.
Photo and More about moons from PlanetforKids
Choices. That's what we have. Choices. During this full moon in the middle of June, I stole away to a friends house and chose to live a cleansing retreat for five days. From herbal teas to lots of water, healthy food, yoga and meditation, it was empowering: Feeling the energy of the moon and restoring the energy of the body mind and soul.
As my mind cleared I began thinking of new intentions. For me. For life. Not just goals, but actual intentions. Then ways to get there.
New intentions:
  • To live wholly and honestly.
  • To live and love with an open heart
  • To care for my world
How to get there:
  • Faith. Family. Friends.
  • To balance work and play
  • To optimize health
  • To be a productive member in my community
  • To grow residual income for my future
  • To continue growth as local business woman.
  • To continue to help others grow in life
  • To grow in meditation, yoga and body mind soul.
  • To love with an open heart
  • To live with an open heart
  • To care for demons and anxiety with love and an open heart
While this list can and will continue to grow, for now I feel content. Content to be present. Content with where I've come from. And content with where I am going.
I could have chosen a different direction during the full moon. One of destruction and discouragement. But I didn't. I made the right choices, lived with my multiple sclerosis and optimized my life.
This past Friday, June 27, was a new moon. A time to focus on these new intentions and to let go of old ones. Let go of spiderwebs in your attic. Let go of all that is unnecessary and set forth a path of positive choices for the coming month.
During the next two weeks the moon will gain in power as it reaches its full size. As it builds so will I. Continuing to find my new self within my illness. Continuing to make new intentions with which to grow my life. Continuing....

What are your new intentions for this month?

Join me in conversation. Let's do this!

#takethatms







Life Coach Sessions - Living Better - #TakeThatMS

A Plan for Living Better with MS

Set the tone.  Define the coming year.  

May I be happy
May I be safe
May I be healthy
May I be at peace

This quote from CALM meditation app really struck a chord with me.   It’s my mantra right now and boy do I need it.  Feeling tipsy in life.  Didn’t realize how tight I was wound.  I am wound.   Too much caffeine and drinking.   Too much bad/rich foods.  So many warning signs to slow down.  So finally, I am.  It was my last hoorah for a while, end of 2016, end of my 40’s, time for a new leaf. 

And boy am I liking the way this leaf is looking.  Once again, inspired and visualizing a lovely life as a writer and blogger.  No more marketing. Slowing down on community events and organizations.  Slowing down and focusing:  MS patient expert, writer, blogger, DAR regent and Trails advocate.  Daughter and Aunt.  Friend.  Kind and compassionate.  Time to watch my tension and anger.  Been really short lately. 

The meditation app, Calm, has helped tremendously.   May I be happy.  May I be safe. May I be healthy.  May I be at peace.   Breathing deep as the mantra repeats in my mind…  #wevegotthis 

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Join me every Thursday at 12:30pm for our free online support group:  #TakeThatMS and let's work together to find the best way to live better with multiple sclerosis.  

Each week I review some ideas, tips and tricks for living better with MS.  There's often homework and soon the worksheets will be posted on this website.  

Then we open it up for discussion if you wish to join us.  It's all optional, easy and free.   

I remember when diagnosed how I knew nothing about MS.  And this was 15 years ago so there was nothing online and 1 or 2 books out on the subject.   

Well, it's a different world these days.  Incredible research on MS, how it works, what might help it and more.  We are learning a lot, applying it to life, and living better because of it.  

Click here to join us on Thursdays, 12:30pm PST.  




FREE & ONLINE - #TakeThatMS - SUPPORT GROUP

Join us weekly and create a plan for a better year and a better you.   Can't join us?  Check out the recorded sessions of our weekly #TakeThatMS online support group for folks affected by multiple sclerosis (MS).  

Are you allowing yourself to be happy?  to be safe?  to be healthy and at peace?  

Together we've got this.

MONTH 1 

We start with a vision statement and inspiration board, we create a plan to be safe.  Together we work on being healthy and at peace.  Then in the following months we will work on these while expanding in other areas.  


RECORDED SESSIONS

Be Happy    
Click Here for Full Session

Click Here for Full Session


UPCOMING SESSIONS (click on link to join or check back for recording)



FEBRUARY - To be announced.  




#TakeThat MS






Tuesday Funny

#takethatms #goinggoinggone #mspals 
 
#lifewithms 



Stress busting away the New Year

In planning for the new year I came across this article I wrote last year for Mango Health   Resonates quite nicely this time of year.


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