#MorethanMS CONTEST!

Life is more than MS!

AND WE HAVE A WINNER!  

In a random drawing of all the entries across social media the winner is...... @REDHEADNUT - one of the +Multiple Sclerosis pals (MSpals) administrators!  

Thank you all for participating!    And thank you Christopher and Banks for your new easy wear every wear line.   This stuff makes life so easy.  I went from camping in the desert to dinner out with friends and felt comfortable the whole time.  Washing was a piece of cake.  Now that December is right around the corner, you will be seeing a lot more of me in my Christopher and Banks black and red outfit.  Fun, easy and comfortable.  #TAKETHATMS.

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We know that #LifeismorethanMS and boy did folks respond!   While running our contest with Christopher and Banks clothing stores we encouraged folks to post a photo on social media and #morethanMS.  We LOVE the response!

The contest ended on November 22 and the winner will be announced next week.  Here are some of the AWESOME contest entries!   Check out some of the entries from around the US:





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Because Life is #MORETHANMS!     JOIN US for a CONTEST


We know that.


And so do the folks at Christopher and Banks clothing stores. They've created a new line of clothes which are perfect for folks with MS - it's the new Easy Wear. Every Wear collection, designed to let us go out and live life while remaining comfortable.

Some of the collection:

   

Here's a chance to win a $75 gift card toward your next CB outfit - allowing you to get comfortably out in the world and do what you love.

Simply take a photo of you out and about - at a farmer’s market, out to eat with friends, on vacation—using the hashtag #MorethanMS, showing that your life is about more than your MS. 

Enter as many times as you want!    


CONTEST RULES
  • Participants can submit as many entries as they would like. 
  • Contest duration: Early November – Nov. 22
  • One winner will be randomly drawn and awarded a $75 gift card toward their next CB outfit that allows them to comfortably get out in the world and do what they love. 

This is going to be fun...   Because life is #MorethanMS!


This blog post was sponsored by Christopher and Banks.





Time to implement the 5/20 aka “five-twenty” - my new plan to do some centering prior to the holidays.  So often folks make big, rash changes in their lives when maybe just a small adjustment will do the job.  



Summer is over and boy did I have a great one!  Lots of fun making memories.   Now that fall is here the rush of meetings, work, family and holidays is on the approach.  With this rush comes the desire to speed through life.  We start to breath too quickly and too shallow.  We eat in our cars and on the hoof as we walk around multitasking.   We lose our graceful intentions in life and it's these intentions that help ground us.

Each morning my 5/20 happens before anything else.  Or at least before I hop on the computer and start working.   

Here is my 5/20:   

Five minutes journaling
Ten minutes writing
Twenty minutes exercise

Taking time to breathe deep.  


Breathe deep.  

#TAKETHATMS
Wahoo!

#TAKETHATMS is soon to be online, hosted by certified life coach, Caroline Craven.     


This new lifestyle support group will be held every week and is a video chat.  This means no writing, no typing, just login and engage!  

Join me on Thursdays, 12:30pm PST, every week at brightbod.com and let's learn some cool stuff to make our lives easier with MS. 



The first one - NOV 3 - will be about easing into the holidays and will focus on nutrition.  With all the stress of the holidays, the busy schedules and the tempting food everywhere, we all have challenges.  But then add MS into the fray and our issues double in size.  

Time to learn some tips and tricks to make our lives better!   

Join us! 

#TAKETHATMS
November 3
12:30pm PST
brightbod.com

Topic:  Nutrition and MS - Tips for the Holidays




Fly Fishing the Texas Coast - when MS takes a break

Ever have one of those days that just makes you love your life just a bit more?   When the MS seems to almost disappear, like the calm before the storm.

Last week my very limited expectations were blown out the water, literally.



For months my trip to Texas had been scheduled:  fishing with my Uncle.  Fly rod in tow my flight was seamless.  Uncle and cousin ready to pick me up and on our way for some good eats.



After much catch up and a good night rest, my Uncle and I ventured down the road to Port O'Connor. While setting up the boat in comes the rain.  One never really knows on the Texas coast what the weather might be like but here was a hovering squall.   And then by the time we launched the boat not a rain drop in sight for three days.  And the winds were almost non existent.  Basically, the weather was perfect.

Hiding from the sun and wind


Not being from the coast, wade fishing is new to me.  Armed in waders (for the jellyfish and too keep from getting cold later), booties and lots of instructions, my feet do the stingray shuffle along the ocean floor, eyes peeled for anything catchable or anything dangerous.  One step on a stingray and a hospital trip is insight, not to mention a lot of pain.

After we both catch a few fish a change locations during the first two days we settle on one early the last morning that looked promising.  Uncle waded in one direction and me in another.   I cast my fly at what looks like a good size speckled trout, one that could provide us dinner.  The fish hit the fly and then all heck broke loose:  trout and mullet came at me, full speed, followed by a "V" shape.  And then that "V" shape lunged at the fish and made a sharp "U-Turn", flashing his gray shark-like skin at me in the morning sun.

Redfish on a fly - Port O'Connor, Texas
After a good shriek and realizing my Uncle was a far distance, I took a deep breath and repeated:   "Don't wimp out now - nothing one can do but keep casting and shuffle back toward the boat for mental comfort," over and over in my mind.

Lady Fish on a fly - Port O'Connor, Texas
All in all, my fly fishing was a beautiful experience.  One red fish was caught after hunting him down caught via sight-casting.  My first like that.  He was probably big enough to keep but I wasn't sure so let him go.  That's OK.  We had enough fish for dinner without him.

Spec Trout on a fly - Port O'Connor, Texas

Wade Fishing near Matagorda Island, Texas

It was a dream come true - fly fishing in the flats with my Uncle.  The fact we caught a variety of fish and returned unscathed was the icing.

Sometimes the MS can be more forgiving than others.  This was one of those experiences.  And I got a trip to Buccee's - a Texas tradition.



Unfortunately my MS sprang up horribly upon returning from Texas and spent two days with muddled mind and obnoxious spasticity.   Oh well.  This is the disease we live with.

#takethatMS 

Living with MS: In a Nutshell

Such a great memory from a couple of years ago.  Worthy of reposting!

The little things with MS add up quickly. Here are a few notes from my trip to Texas in a nutshell to remind myself that I can thrive with MS:
  • Weather - 70F is about the perfect weather for MS
  • Family - quality time necessary for healthy living
  • Friends - how do we live without them?
  • Relaxed schedules - going with the flow and learning to float...
  • Good eats - healthy, and not so healthy! Sometimes it's just about the taste.
  • Good drinks - from juicing to water to local brewery, No Label, fun to explore!
  • Activities: TV, film, photography, hiking, golfing and more. Got my Canon 400mm lens back from shop. Watch out birds!
Here I am trying to play golf after 20 years of not trying. Haha. Had a good coach. But boy was I sore the next day!

  • New movies/shows - started watching Heartland. The simple things in life...
  • Good conversation - in person and online. Being present.
  • Exploration: Lady Bird Johnson wildflower center. Love this place! Visual. Physical. Peaceful. Beautiful. - having an open mind and enjoying all there is in life!

Some photos I took along the way:
Cardinal at LBJ wildflower center
"Texas...where nature and culture meet"
"Healthy living with MS...where nature and culture meet"
Let's do this!

Groundbreaking for the LA River and for Girl with MS!

What a memory from two years ago!   #takeTHATms  

The first fishing derby at the LA river! Fly or spin, it was a day of fun and good peeps, beautiful weather and a handful of fish. Here I am at opening ceremonies with Jim Burns speaking. I bowed this photo from His blog, LARiverFlyFishing which is very informative and keeps you up to date on fishing conditions and other fun activities along the bike path.
"Fishing for carp, waiting for steelhead"
The last steelhead taken out of the LA River was photographed in 1948. Can we bring them back despite the concrete channel and city life?
We now have bass, tilapia, carp, bluegill, sunfish and more...thanks to Friends of the River (FoLAR) and other organizations and peoples hard word.
FoLar or Friends of the River have been working since 1986 to being fish and wildlife back to the river. With over 212 bird species alone, I think they've done an outstanding job. Not to mention the fish!
Well, who would've thought I could live in LA and drive 20 minutes to a fishing hole without getting on a freeway. As y'all know with my MS, driving is not a big option for me. But I can get to Atwater village with about four turns and twenty minutes. I'll take that all day long.
They even had some great trophies and prizes! I didn't land any and missed four but that's OK with me. I'm a bit rusty on the fly so practice is necessary for me.
The river rover is a 38' mobile educational, rolling river. Amazing for students of all ages!
While wading in the LA river is not usually open, it was open for the derby. Here is a shot down stream and one upstream. You can see the fishermen on the bank.
While many folks just trudged through the water in river sandals, I went for the grip of my patagonia wading boots and my redington waders. I really didn't need waders for the fishing I do along the she but I love the grip on these and wanted to be MS safe.
Here are the winners! The largest was a 6lb carp. And then a few small large mouth bass were caught. The ones I kept missing. Oh well. For me the important part is being on the river. Watching the wildlife. Enjoying the scenery and the people. Or being solo and enjoying the solitude. Whatever I'm in the mood for, fishing brings it to me.
Well, because sometimes it not always about the fish...
The river opened to fishing just a few years ago in 2011. It's taken a lot of effort from many people and groups to get this going. Can't thank them enough!
Here I am chilling by the river on a different day. Again, I missed a few. Got to practice my timing.
Quite a flow of water in the river. Enough for small flat bottom boats and kayaks to meander.
And even if you don't fish, there's plenty of trails for biking, walking and hiking along the river.
Can't wait to go back!
Groundbreaking for Multiple Sclerosis
Fishing with MS is doable for me if the conditions are right. But I'm not sure walking around with sharp pointy objects on slippery rocks is too smart with my balance issues. Also, I have to be very careful about my energy. It's easy to get wrapped up in the excitement and not listen to ones body which results in a terrible day after. I actually listened to my body and ended as needed. But I'm still pretty wiped out today.
Photo courtesy foLAR.org
I kept cool and that was important. I brought my cooling vest along and had a few frozen wet bandanas with me but didn't need them during the derby. I kept hydrated with my camelback and had an instant cold pack in bag for an emergency. Ok, I actually looked kind of silly, as if I was ready for a six hour adventure. But with MS you never know. But the temperature stayed relatively mild and the slightest breeze kept me cool. I also stayed near the bushes and conserved my energy and at one point went Into the water and cooled off that way. I didn't trust my balance to go very far from shore.
Photo courtesy foLAR.org
I am going to get a waking/wading stick. I've seemed to have lost all my old hiking sticks. But with my balance it would be a good idea. And I love the stickiness of the wading boots so will wear them again. The only issue was that my big toe on my left foot bumps into edge of boot. Need to trim toe nail or something but they're not that long. Obviously I am trying out some new gear and getting ready for bigger trips than an hour along the LA river.
Photo courtesy foLAR.org
Photo courtesy foLAR.org
And tying on flies is not easy for those with MS. Between wonky vision, heat intolerance, balance issues and shakey hands, it takes me quite a bit of time to change flies. But yesterday I did several times. I'm getting my rhythm back so to speak and it feels so good!
So with anything and MS we have to take it slow and easy. No major expectations. One day, one fly, one fish at a time.
And we also must reward ourselves! I've worked years with my health and managing my multiple sclerosis to be able to do somehing like a fishing derby. Never thought it would be possible. I need to get a good wading staff. Maybe one with a seat so I can sit and tie my flies on. Yep, I'll be the lazy fisherman with a chair, a beer and eventually a fly tied onto my line. And I will be loving it!