Our Voice in Song with David Osmond



Why me?  Why not me.  

An interview with David Osmond


While multiple sclerosis may not be hereditary, a positive attitude could be in the genes.  Diagnosed ten years ago with MS, David Osmond is not unfamiliar with the illness.   He watched it take his dad, Alan Osmond, off the stage after a lifetime of performing.  And then, after his own lifetime of performing, the illness struck him hard.  The tripping and falling was bad enough.  But then it took David’s music, his passion and livelihood.  His fingers failed him as guitar strings sat quiet and his voice vanished.

At 26 years old, one of the famous Osmond family performers had no way to perform.   Life as he knew it was over.    

Multiple sclerosis (MS) is like a fingerprint; no two set of symptoms the same.  Because of the way the MS was attacking, much differently than it had his father, it took awhile for David to be finally diagnosed.  Then it came, relapsing MS.  Really?  What is this disease that strikes people so different, so random?  David went into absolute denial.  This was his father’s disease.  It’s not genetic.  Why me?  

But then things started to change.  After being stripped of his livelihood, there was nowhere else to turn but to his true self.  To that deep down faith and those core values that are practically part of David’s DNA.   

The Osmonds were born and raised to find the good in life.  They were inspired to use talents for good and to thrive to be a good example.   David remembers fondly his Grandma Osmond, a strong and positive influence.    

“This too shall pass,” she would say, showing just how this family rolls.  From the top down the Osmond family has had a push for the positive.   

Not every family has a motto.  Brought about by challenges, endurance, good times and bad, the Osmond Family has adopted “ETTE”.  Or, “endure to the end”.   This motto has been revised by David to say, “Endure to the end of the day,” because sometimes with MS it’s just enough to get through the next 24 hours. 

Despite the struggles, David has been surrounded by positivity.  Never once did he hear his dad, Alan, complain.   Instead he was taught to look inward from the outside, to take a different perspective.  To “recognize the disability in order to define [one’s] abilities”.  



One prominent change in life happened when David took a new view on the old, “why me?” victim mentality.  Instead of asking himself, “why me?” about the MS, he turned the question around and started asking, “why me?” for each of his blessings.   He focused on the positive.   And then, the negative just seem to fade away. 

“Practice” is what Osmond attributes much of his success in staying positive.  “Life is tough,” but get up, go forward and focus on the blessings.  “Why me?” Yes, me.  Why am I blessed with so much?”

Performing has also helped David cope with his illness.  When one is always on stage and in the public eye, one quickly learns to wear a smile. All the time. Combine this with a positive upbringing and, well, when life gets tough, one learns and practices to “put a smile on and deal with it”.

David bought up a great point about what it means to wear a smile.    That wearing a smile is a choice.  It’s a person’s choice as to how they react to life.  Life is tough.  For everyone.  

At this point David quotes a great philosopher, “Socrates thought that if all our misfortunes were laid in one common heap, whence every one must take an equal portion, most persons would be contented to take their own and depart”.

But being positive is not always easy.  “It’s not the disease but the lack of hope that gets you down,” says Osmond.  It takes practice, a lot of practice, to remain positive in life.  Then adds, “Being sad and negative isn’t worth it.   It’s just much easier to be happy.”

And then David reminded me of another great philosopher, Dr. Seuss, when he started to quote his poem,  Did I Ever Tell You How Lucky You Are?

“When you think things are bad,
when you feel sour and blue,
when you start to get mad . . .
you should do what I do!”

With years of practice, surrounded by positivity, David Osmond told his MS to take a hike.  Ten years into the disease David is back on the guitar, has three amazing children, and a loving wife.  He not only has a voice to sing but also to advocate loudly for MS.   Those feelings of denial grew into gratitude, thankful for everything the disease has brought to his life.



In appreciation of this gratitude, a new song was written and performed by David.  If music is what feelings sound like then David nailed it with his song, 'I Can Do This'.  He wrote it to inspire people with relapsing MS to do more than simply cope with the disease, but to live a better life with it.

As part of his efforts to advocate and help folks with MS, a new campaign was created to pay special attention to folks with relapsing MS.  This campaign is called “Our Voice in Song,” and is located at ourvoiceinsong.com.  

In addition to the song, there are many resources available on the website, Ourvoiceinsong.com.   In addition to a full-length story of David’s fight with MS, there are tips and tricks, and a free music download of his song, “I can do this”.  

While positive attitude may not be in our DNA it is transferred from birth through growth in everything we do and everyone in our lives.  Every moment we have a chance to respond to life, we have a choice.  Is it positive?   If not, find a way to smile.  Turn it around.  Ask a friend, family member, support group.  Ask someone to help you find your smile.  It will be worth it.     


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My Life with MS

Check out the article that David Lyons wrote about my life with MS. Thank you David! Together, all of us, we are going to #BeatMS

http://www.everydayhealth.com/columns/ms-fitness-challenge/surviving-or-thriving/

Caroline Craven, the Girl with MS
My story via @everydayhealth.

Not all great MS stories come from competitive athletes, bodybuilders and fitness contest winners. There are stories that inspire, motivate and encourage from those who suffer from MS and choose to fight the disease through health and fitness without looking at the prize attached to a contest.
Caroline Craven is an individual who takes control of MS through many different aspects of health and exercise inside and out of the gym. She blogs, tweets and social medias her way into the lives of many to lift them up and help them on their MS journeys. Caroline tells us about herself and her goals in today’s blog and inspires us all to stay active and enjoy our lives. Here is Caroline’s story in her own words:
MS Fitness: Are you simply surviving or are you thriving?
In 2001, while traveling throughout Guatemala with some friends, my vision and balance started waning. Fast. Approaching the airplane to return home to Los Angeles, the local vendors chattered about the “American on drugs” as I stumbled through the airport, palms splayed on walls. But I hadn’t taken any drugs, and I didn’t know what was wrong.

Continued....
This link should work now! Sorry about that.

A New Year. Time to manage some stress!

Another new year and several intentions to follow for my multiple sclerosis. Fourteen years since my diagnosis yet I'll never forget how lost and scared I was stumbling to my doctors office looking for answers. Well, not the answer I wanted with an MS diagnosis, but better than being dead. So bring it on and let's do this.
Fourteen years later and I've learned so much. I've talked a lot about nutrition and other ways to manage ms. One area that does more for me than anything else is stress management.
How do we best manage stress?
A few of my tricks include:
  1. Take a break and recharge the battery. Even if it's just five minutes in a quiet, dark place can help unwind and recharge. No lights no sounds. No electronics. Just me, relaxing and recharging. Five minutes can mean making the afternoon or not. Try it out and see what works for you.
  2. Let go let God. We have enough static in our lives to charge an army. Now seriously, is what we are stressing about even within our control? Time to staple it shut, give it a name, and throw it away. Choose carefully what your energy is spent on because if it's used up on silly stuff we have no control over then where do we get the energy to deal with actual important stuff? Let go of it. Staple it shut. Throw it away.
  3. Ask for help. My friends told me, after I got sick, that MS taught me how to ask for help. Finally. And that's a good thing. We are not in this alone. There's a huge community out there waiting to help us. From twitter @thegirlwithms and @mspals to MS nurses and support through programs like http://onetoonems.com there are a variety of ways to find support.
These are just a few tricks. Movement and attitude are other contributing factors. Often I participate in morning free flow and chat sessions to help me deal with my MS, life and all that goes in between.

In addition to flowing and chatting, it's imperative for me to stay on top of the stress management aspect of MS. This means every few days, checking in with myself and seeing how I am really doing. Am I sleeping? Am I eating healthy? Am I full of angst or able to sit, relaxed in a chair? No two of us are the same. But we all can have similar feelings of unrest. These feelings often are a result of stressors that haven't been dealt with in appropriate manner.
WORDS CAN HURT
Wow, and let's watch those words we are using in our daily lives. Are we setting ourselves for success? Or for failure? Are we saying "I get to work for the next hour" or "I have to work for the next hour"
Every word we use, even in the minutest of details, can set us up or start to destroy us. Words like Try, Have to, Need. Let's use words such as Do, Get to and Want.
"I don't have to work today. I get to work because God gave me another day on this earth that wasn't guaranteed" (what is guaranteed anyway?). "I get to work because my clients believe in me and hired me to do their work."
Whatever it is we are doing, let's use the words that put it in the right frame of mind. If we go in negative, we come out negativ. And that is not managing stress for MS. Positivity helps mange stress.
In addition, get moving. Can't emphasize this enough. Even a scooter ride around the block will help get the blood flowing and the air moving.
There is so much we can do to help manage stress.
What are some of your top stressors and how do you Manage them?
Join the conversation!

Let's get moving!

Even from bed or a chair, we can get the body moving and flowing. I was able to stand for some of these as I've been working daily on balance and other MS related issues. Wanted to share and continue to receive inspiration from you, my friends. Please remember I am not an instructor. I practice a casual form of stretching based on yoga to help keep my MS at bay. Yoga has been my number 1 solution for this crazy disease, from emotional support to physical confidence. Don't know where I would be without it!
Whatever we do, we need to be safe, gentle and always thinking about our illness. This is what I do:

Join me for an MS morning chat and some free flow movement!

Good Morning World!
MS morning chat and free flow sessions. - Join me! A casual chat about MS and what's going on and a couple of days of watching this girl with MS get moving. The videos got cut off a couple of times. That happens with me. But it's a start and gets us moving in the morning which is what these old MS bodies need.
Please note, I am not an instructor. My free flow yoga type routines are ways for me to wake up my body and get the blood flowing. Sometimes I just chat and swing my arms. Sometimes I fall into a nice yoga flow. Each day different, just like The effects of multiple sclerosis.
Here we go...
Sometimes the inspiration of seeing what I've done over the years, what I couldn't do, What I can do now, it all helps! Everyday is different. Take advantage of the good days!
Honestly I'm pretty wiped put today. I volunteered at the casting club yesterday to spread mulch for the wildflowers. Then helped the folks with a dinner party. Wanted to go to music in the park but family trumped friends yesterday. Next week I plan on going. It's such a fun event and one I can do!
Today it's about getting back to work after the weekend.

Let's do this!

Taking Action on MS

Wow!

I'm feeling very grateful and fortunate to have spent the last year touring the country learning how people "Take action on MS".  


As a certified life coach, I joined two other lifestyle experts, along with Madeline Stowe, and traveled the country to talk about living with multiple sclerosis.   Madeleine does not have MS but her father did and as the daughter of someone with this oft debilitating disease brings an interesting perspective to the table.

Each lifestyle expert focused on a different area.  My specialty is teaching tips and tricks to better manage stress with MS.  The other two areas include physical exercise and emotional patterns with MS.   All three areas are hugely important to learning to thrive with MS - or any chronic illness for that matter.  


In fact the program had such success that five "webisodes" have been produces about living with MS.  These webisodes are available at Takeactionms.com

It still amazes me how some of the simplest tools can make a positive difference in the lives of people with multiple sclerosis.    There are many tools available in these webisodes along with touching personal stories with which many of us can relate.

It's easy to feel overwhelmed, even without MS.  Even with my training and tools, I can fall victim of my own stress.  It's easy to do and that's why it's so important that everyone work together to help those with MS.

Here are just a few tips to help:

1.  Take 5  (literally, take a five minute time out and let the battery recharge)
2.  Learn to say "No".  Many folks with MS are type A overachievers.  We have a condition.  An illness.  Be kind and gentle to yourself.
3.  Start the day with positive words.  Use them throughout the day.  Avoid words that add stress such as "need" "must" "should".   Instead use words such as "I get to"  "I could".   Start with one positive a day and watch this awareness help you grow into a healthier attitude.

There are so many more tips and tricks!     Let's chat.

Caroline





What happens during a "relapse" and what caused it?

A relapse is basically new nerve damage to the brain or spinal cord area. A relapse may cause old symptoms to flare up or cause new symptoms to occur. It's quite random. A variety of activities can help cause a relapse.

My relapse nemesis is mismanagement of life. Imagine a diabetic who doesn't take his insulin when needed. Or doesn't eat properly. Or an alcoholic who doesn't work their own program. That is what living with MS is like. And I'm not as strong as I would like to be and I often overdo.

Because MS effects the nerves, many of life's daily activities can be more difficult during a relapse. Just some of the areas hit by MS:

  • Balance / Coordination
  • Weakness
  • Vision
  • Numbness / Tingling
  • Thought problems / Cognitive Thinking
  • Dizziness
  • Pain
Found this great summary of potential relapse outcomes at WebMD - Click Here.

But I don't agree with their slide on preventing relapses. They prioritize western medicine over lifestyle change, nutrition, etc. This girl with MS prefers to reverse this thinking. Place lifestyle first. Make all the natural changes we can toward a healthier lifestyle. Look at Chinese, Ayuervedic and other alternatives. Then go to Western medicine. Use a mix of medical styles to find a balance that works for you.

The goal is to find a lifestyle program that actually works on reducing flare-ups not just covering up the symptoms!



Part of my program includes:

  • Reduce stress/work
  • Accept consequences of reducing work
  • Write, read, explore the mind
  • Learn to chill
  • Breathing meditations
  • Yoga
  • Faith
  • Family
  • Friends
  • Nutrition
  • Physical outlets. Horses for me
  • Mental outlets. Computers and writing and design
  • and many more...
What are some of your program activities?





Diapers. Really? Snaughling and Incontinence for adults

The day has come.
Diapers? But I want to Snaughle with confidence!

Really?
Yes, really. Nervous bladder nelly here has recently been living in her disposable diapers and pads. These things are nasty for the environment. They must be. And if you wear one once but not soil it, well, that's kind of gross to reuse it. And then the red rash comes. I bathe. I clean. I dry. But one day in those disposable wraps will get me every time. Especially now that it's bikini weather.
But wait, I can't completely bash the disposables. Without them I would be a mess! Like just last week when I was serving jury duty in Burbank, California. Usually I have a doctors release. And I did this year. But it came the day after Memorial Day. How could I at least not try this year as I have been recently blessed with better days? Think of the hundreds of thousands of soldiers over the course of history and what they have done or are doing for their country. Time to step up to the plate Ms Craven. Time to step up to the plate.

Well I made jury duty and the case was dismissed by noon. Phew, I made it! And hadn't peed my pants. I took advantage of the restroom then went to my car and drove ten minutes to the Los Angeles River. And decided to do a little fly fishing. I wasn't really feeling it. Body and mind were out of sync. I watched the water for a bit. Made a few castes. Then headed back to car. Either way, Uh oh. Bad choice. Quickly I got to the front seat of my car. Time for the coffee cup. My bladder needed evacuating NOW! And I could tell the diaper wasn't going to hold it all. I hadn't had anything to drink. Where was this all coming from? So I tactfully positioned myself over the cup and then proceeded to overflow all over the front seat of the car. The diaper was used, the mess was mopped. Well, That was interesting. I cleaned myself off best I could and realized how thankful I was not to have been in the courtroom. Ack!

So, although my disposables have saved me time again, the desire for reusable protective underwear is intriguing. And now very accessible.

I am getting ready to try out my first pair of reusable peepants. They look OK too. I should have them this week and will keep you posted on how I like them. I will be trying two of the following pairs from WearEver.
I am Excited to try something new!
I ordered the smooth and silky and the black lace ones. And for every pair I order, the company will donate $1 to the MSFoundation. Wahoo!
Check out this program with MS Foundation and Wearever:
This is great news! Talk about a win win for everyone. MS Foundation has partnered with Wearever this June to raise money to support MS Foundation’s efforts. Wearever is a health and wellness apparel brand with lines of incontinence underwear that assist those living with incontinence maintain their dignity while also being protective, comfortable and affordable. These innovative undergarments can be washed and re-used 250+ times, saving the user hundreds of dollars on disposables.
Wearever is donating $1 for every purchase of men and women’s undergarments made in June back to MS Foundation.


Thank you Wearever for helping us all with MS live a better live with our various illnesses. We appreciate you!This great program ends June 30 so let's all act today and see how we can help our bladders AND help others!
UPDATE: the panties came and I am sporting the smooth and silky as we speak. Go ahead, make me laugh and snaughle! While I know the underwear won't hold a pint I do know that I can leak with confidence! And that's a huge confidence builder. In fact I'm going a walk right now and now plastic diaper on my bum.
Thank you MS Foundation for all you do to help us With MS. Check out their website and to see all the great events, research and activities going on around the U.S.
Let's do this!







A Day of Rest, Rejuvenation and Random Surprise!

Fortunate to be at my friends little hideaway. Resting and recouperaring from the last couple of weeks. Energy is just low. Drained. Wiped out. But here I am in a little piece of heaven while my body rejuvinates.
This is Leroy. He is my dog of the day. He lives here and let's me come over and rest with him. He seems to know just how much ball I can play before I get too tired.
Last evening was spent by a beautiful fire. It's an original Batchelder fireplace. This is quite the bungalow and could easily live here. Lots of great reading around. No chance of getting bored here!
Yesterday we celebrated the life of a community trails advocate, fellow board member and friend, Elizabeth Blackwelder. It was a beautiful ceremony and saw many friends and acquaintances. But needless to say I was wiped out. Last night and this morning. Legs on fire. Time to rest.
Today was a full day of rest. Other than a doodle here or there, a fledged attempt at a wall etching, this has been a pretty chill day.
Batchelder fireplace 1924
And then the random surpise.
Received a Facebook post about a new website/business called homehero.org. Basically it connects those needing in or out of home health care and those with health care providers. This is huge in my hood. So I contacted my old friend and boss, Mike Jones, of Science, and congratulated him on the launch. Next thing you know, I have a conference call Monday afternoon with Home Hero to see where I can help out. I have so much passion toward what they are doing it has me absolutely psyched! I will keep you posted.
I will give this project more attention but wanted to get it on the blog! Many of us are going to need this one day or another.
Rain is slowly making it down the State of California. Hoping it hits here. We need it. Desperately, we need some rain.
Off to do a rain dance...of sorts!

And to enjoy yet another fire...


Feeling a little MS, but bring it on!

Dogs, good friends, a fire and some stunning wine make for a lovely afternoon and evening during the rainstorm.
Cowboy and Tucker
Some local flavor as well as something stunning from the cellar.
After an amazing salmon dinner with friends, we brought the horses in from the rain as the fields looked like they could flood a bit when high tide came in.
I was tired by the end of the day and settled Into an early evening. While I slept pretty well, I did awake around three am and took awhile to fall back to sleep. Wasn't anxious or anything just mind wandering.
For the first time since I've been in Oregon I could feel the MS in my legs. The fatigue and weakness creeping in. Oh crud! I haven't even fished or ridden yet. But that's OK. After a little stretching they seemed better. I got dressed and ready for our morning walk.
Today we walked with the ladies on Beaver Creek. The weather looks a bit threatening so I left my camera at home. I considered my rain pants. Hmmmm. Not sure why I only considered them. Would've come in handy.
The creek was swollen and the weather seemed ok. Then the skies opened up. And boy did I wish I had my rain pants.
A little flooding but there is blue sky! Looking forward to a ride tomorrow on the horses.
Let's do this!