Amazing Vegan Gluten free Cookies and the Benefits of Lime!

Made these Snow Turtles yesterday for our wellness fair. Huge success!
Simple, easy and delicious!
I used fresh lime juice and zest. Small bites packing lots of flavor!
Super easy!
Ingredients:
2 cups Pam's gluten free flour mix
1 cup solid coconut oil
1/2 cup powdered sugar and some for dusting cookies at end.
Juice of 1-2 limes
Zest of lime
1/2 tsp sea salt
MIX this all up with your very clean hands! Your natural body temp will warm up the coconut oil and you will get the hand spa treatment of a lifetime!
As you mix the cookies, add a little oil, drop by drop until you reach desired flavor. Anywhere from 4-12 has worked.
Roll dough into little balls and place on parchment paper on cookie sheet.
Bake at 350 for 15-20 mins, remove, dust with sugar whole warm. Remove from sheet to cool. Serve and enjoy!
Everyone asks for the recipe so bring it along!


Interested in learning more? Ask me about lime and other oils.
Join the conversation!
And #takethatMS

Mind Body Cleanse - my Journal

Hello all!
Welcome to my journal about my gentle cleanse as I reboot my mind body connection. I'm working with award-winning author and certified fitness trainer, Loa Blasucci, and her online mini system is just 5 days. I can do this!
Day 1:
9:13am
What a glorious morning. Had a restful night sleep and ready to start the cleanse and reboot my mind body.

Started off by not drinking the usual cup or two of coffee in the morning. This morning started with two glass of lemon water. I'm used to going back and forth from water, tea and coffee, so this first step is pretty easy for me. What's interesting is how my body was craving the ginger-lemon hot hottie and not the usual black sludge. Now don't get me wrong, I love a nice cup of coffee now and then, but going back to hot lemon water is fine by me.
Having several things on my to-do list today encouraged me to get started early. But, no slumping at the computer for the next four hours. Twenty minutes - get it done and get outside for a walk before it gets too warm. And crank it out I did.
Looking at the clock and realizing it's later than I would like I check the temperature outside. Beautiful and not too warm yet. A shade trek should be nice and doable. Not too hotside...yet.
Slow and lethargic I moved along the street, my 82 year old father by my side. He wasn't slow, I was. He was on his cool down after walking 1.5 miles at the gym. Good genes.
As we walk, my mind starts releasing toxic thoughts. I can feel them coming and then, just as quickly, they leave. No stressors. No anxiety. Just thoughts that come and then leave. I practice breathing deep and with intention. What do I want to release today? what negativities are holding me back in life? Ahhhh. My breathing gets deeper. I can do this!

In a gentle room I stretch. Nothing harsh or drastic, just a peaceful environment, and positive thought in my mind and heart. Breathing deep, I stretch a few minutes and then head back to the laptop.
After about a half hour on the laptop working away its time for my morning juice. I am so blessed to live in southern California and have this abundant produce everywhere around.
I'm off to cook, juice, chop, and prep for the coming week of cleansing.
---
Made plenty of reboot soup, salad, quinoa and fresh juices to nosh on during the day. Delish! Throughout the day my mind was continually trying to hang up on something. To get anxious and upset. To find that one thing to justify anger. But it wasn't there. I let it go. I kept letting it go. Every time something got me anxious and short of breathe I took a big deep inhale and let it go. And it worked. I felt free of angst and it felt amazing. I'm looking forward to continuing this freeing feeling with breathing and relaxing techniques as I cleanse months of crud out of my system.
Time for bed. Took a relaxing bath with bath salts.  Boy did I sleep well! At least the first part of evening til about three am, then I woke for a bit. But that's OK. I fell back to sleep a bit and woke for good about an hour ago.
Day 2:

Continuing my cleansing and growth through the second day. Starting the day off with a ginger lemon hot tottie and prepping for me gentle Loa Flow class that starts in an hour.
My body is warm tho. Very warm. I can feel the inflammation in my legs as the crud from my body is expelled. I can see negative thoughts leaving my body and mind. A reboot is happening and it feels so good!
I am aware that our bodies are amazing and they cleanse on their own. But sometimes modern day life makes a cleanse feel necessary.
Well, actually I never made the tottie and ended up just drinking filtered water. But that's what my body was asking for and I listened. That's one of my best learned lessons in life. Listening to the body. Really listening.
The amount of anger in me taking to the surface is surprising. I didn't realize how many negative things had accumulated. In my body. In my mind. But today, yesterday and this week, they are exiting this building!
Cleansing in some ways has become easy. Almost. But there are deeper parts about a cleanse that can get the mind going.
The light meals and juices are keeping me going all day. I made some lovely lemon ginger iced tea to sip on which became real refreshing on these warm summer days.
Day 3:
This was a good week to choose to cleanse. My schedule is light and easy with some work but not a lot of obligations.
Interesting as thoughts of work and projects would enter my mind, trying to raise my anxiety level, but my body just breathed deep and relaxed. No anxiety. Wow. The mind body cleanse is working!
Throughout the day I practice deep breathing and some gentle meditation. My intention is continually bringing my mind to the present as my anxiety levels release and disintegrate. Man this feels great.
Again this morning I go for the filtered water. Several glasses before I get out of bed. How refreshing!
My morning walk started with a spring in my step. Where did this spring come from? I'll take it that's for sure. Must be the lightness I'm feeling as the crud is leaving my body. I pick up the pace. It's supposed to be a gentle walk but my legs are wheeling spry. I take advantage of the feeling and let my legs go with it.
By the time I got home my whole body was aglow with sweat. My body felt strong light and hydrated. This is a feeling I like and will bring to intention throughout the rest of this cleanse.
Patience. I'm not known for it and struggle daily with finding it. Today was a good example of how I'm growing as a person through this reboot. I was at the market picking up six apples for my juices. I got in the wrong line. Almost a half hour later I am being waited on so I can pay my $1.68. The lady in front commented on how calm and happy I looked. Well, there was nothing I could do about it so I mentally succumbed and enjoyed a couple of magazines while waiting. Love this feeling! This is also an intention I'm carrying throughout the week and beyond. Succumb. Relax. Know the things we can change and the things we can't. Courage. It all helps.
Day 4:
Morning world!
What a great night sleep. While the last several nights brought sweats, pain, and inflammation, last night had just one wake up for a restroom break and some water then back to sleep. Yay team!
I'm off to make a hot lemon toddy! I'll be back. But for now I'm enjoying my cleanse. I have a gentle schedule today and will focus on my intentions.
Juicing through this day feels refreshing. Almost easy as if by following these simple instructions gives less to think about. The cravings are not really there. And an earlier time of healthier eating raises its beautiful head and reminds what eating could be like. Oh I love this reminder!
The negative thoughts still escape me. I love the feeling of them leaving my body as my lungs fill deep with air and comfort my tired, MS body and mind.
Bits of anger and impatience flit about reminding me of my weaknesses. I struggle for a moment but then the fleeting annoyances fly away. Fly away. Float away. Fall away. They do it all and my strength grows.
My intentions during this cleanse are to let go of what o can not control and to choose those elements I want in life. My life goals for this chapter are writing, artistry, and living each day best I can.
Day 5:
It's 2am and I can't sleep. Keep thinking of my beautiful aunt who is dying of brain cancer right now. Hospice is with her and she is joining her God as she leaves this world. Man, I love this lady and now she's gone. The tears flow freely. For my aunt. For her family. For my uncle. Life is amazing. So powerful yet so vulnerable. Life is the snowflake we are given. Unique. Delicate. Destructible.
How do we protect our snowflake yet let it shine like no other?
This day became a bit more challenging in ways and easier in others. After a morning stroll to get the blood flowing, and so,e time in the garden, I continued my juicing. Keeping my schedule light I used this time to relax, reflect and rejuvenate. Ahhhh. I needed this!
We had a big dinner to go to tonight so I glad I stared my cleanse a bit early. A local favorite prime rib spot is closing. I'm not a big prime rib fan and coming off the cleanse wanted to keep it light so went woth French oinion soup and spinach salad. I keep the bread and cheese to a minimum and are the broth and onions. Delish! And plenty for dinner.
I always have this great Sense of renewal after a cleanse. A true reboot. And this was no different. As the toxic crud left my body I was left with clear vision of what I choose in life and what I am letting go from my mind.
I could still feel a few rid bits of toxicity left in me. Negative thoughts, anger and impatience. As I breathe through each possible moment of anxiety I know that I have the tools to move forewar, successfully. And that's just what I'm going to do, use my tools: journaling, meditation, exploration, nature.
Join us as we move forward with what we choose and let go of what we want no more.
#takethatms #mspals














What does Orange mean to you?

***Here's a repost fom last fall. ***And then, a random orange balloon floats into my yard. I search about but from where it came I can not tell. Halloween is coming upon us. A party could be near but nothing in sight. I accept it as a message and am inspired to explore.Orange was a color I never wore nor associated with much until the past few years. Orange has become to mean new things other than Halloween and pumpkins. It is the color for multiple sclerosis. The MS Orange.

http://www.goodiesbygail.com/index.php?main_page=product_info&products_id=489

Embroidered patches available here

http://www.msstoreipp.org/imprinted-orange-balloons-pack-p-90.html


http://www.etsy.com/listing/125780055/multiple-sclerosis-nail-decals-ms-nail?ref=market

So what does the color orange stand for? A friend found this online and shared it with me:Orange

Orange combines the energy of red and the happiness of yellow. It is associated with joy, sunshine, and the tropics. Orange represents enthusiasm, fascination, happiness, creativity, determination, attraction, success, encouragement, and stimulation.

To the human eye, orange is a very hot color, so it gives the sensation of heat. Nevertheless, orange is not as aggressive as red. Orange increases oxygen supply to the brain, produces an invigorating effect, and stimulates mental activity. It is highly accepted among young people. As a citrus color, orange is associated with healthy food and stimulates appetite. Orange is the color of fall and harvest. In heraldry, orange is symbolic of strength and endurance.
From: Color-Wheel-Pro.com I don't know about you all but I'll take the color Orange all day long just for it's meaning. The one issue I have with orange is that it is heat provoking as a visual element. And we are already overheated! The nice thing is that blue is the opposite of orange on the color wheel and blue is very cooling. The two work well together.

 
I remember the use of orange in marketing/advertising. Its stimulates the appetite. Ever wonder why many foods out there are either orange or labeled in orange?

http://en.wikipedia.org/wiki/Doritos
http://www.collectingcandy.com/wordpress/?p=7187
http://mojosavings.com/free-kraft-mac-cheese/

I do know that it's the color of Hermes. Oh yeah, that orange I know!

How cool would it be for Hermes to create a custom scarf as a fundraiser? You know, something orange...

http://usa.hermes.com/woman/scarves/scarves-90/silk-twill/orange.html

I bet someone like Nancy Davis at EraseMs.org could pull this one off! She always has lots of cool ideas and fundraisers: Click on images to shop!

http://erasems.org
http://erasems.org

And then I just found this cooling scarf, also a Nancy Davis project. Many of us find cooling scarves quite helpful. This is a nice, fun orange one.

So what does orange mean to me? It means a lot more than it did even a few weeks ago. Most importantly it unites everyone with MS across the globe. No language barrier. Nothing. Orange is orange. Here's to orange! I'm off to carve a Jack O Lantern, eat some reeses, put on my orange tee shirt. I'm off to be Orange and "represent enthusiasm, fascination, happiness, creativity, determination, attraction, success, encouragement, and stimulation."Here's to saying #thatthatMS!

 

Kidney Yin?

I am asked almost daily, how are you surviving your MS?  Has it just gone into remission?  No.  It doesn't just go into remission.  At least not for me.   I have to take steps to put my MS into remission.  Lifestyle changes, diet changes, activity changes.

My survival with MS is significantly contributed to my nutritional intake.  As you know I studied holistic nutrition at Bauman College and became a certified nutrition educator.  This education was inspired by my three experiences with kidney yin deficiency.  I recommend looking it up and reading about it as I will be brief.  But the bottom-line, the symptoms of kidney yin deficiency are near identical to those of multiple sclerosis as well as other auto-immune diseases.

More of that to come.  What's important to me right now is to combine my holistic education with the Chinese based recommendations to create a macro-diet to rebuild my organs and blood.

So, Shen-Cleanse this Daddy-O:

1.  Shen Cleanse - teas or tonics.   I'm using teas this time.
2.  ShenTrition - alway
3.  Water or Plenty.  Have you investigated the living water yet?
4.  Yoga or the like - a nice yin yoga caught me in a loop for over two hours the other day.
5.  Outdoor health - gardening, hiking, walking.  Enjoy and bless our surroundings.
6.  Building diet - I need my calories right now. Healthy, digestible nutrients.  Here's what I'm talking about:
  • Fuji apples
  • Swiss chard
  • Gala apples
  • Turnip greens
  • Roasted turnips
  • Steamed green beans
  • Quinoa, onions and home made chicken stock
  • Black bean, corn, jicama jalepeno salsa
  • Silver salmon fresh caught by very cool father on recent fishing trip to Canada and perfectly marinated by awesome mother and myself with an herbal explosion from the yard overgrown with tarragon, marjoram and thyme.  Broiling worked just fine this cold fall day.
  • Radish, lime, cilantro salad
  • Strawberries
That is a pretty kidney yin friendly diet.  It can be better, more focused.  We'll add some pine nuts to the quinoa.  Keep with the greens.  Oh yeah and have some kidney eggs.  Egg whites, turnip greens, turmeric, bacon and salmon.   No the bacon has nothing kidney yin friendly about it but it makes me happy.

Turmeric on everything, baby, go for the turmeric!

More on this later.  Check out Paul Pritchford:  Healing with Whole Foods and Henry C. Lu's Chinese Natural Cures.  Many other great folks out there.  Also Dr. Stephen Gascoigne's The Chinese way to Health.

Off to ingest some medicine - food that is.

Memories as if yesterday, my travels with Kat:

666 miles
6,000 photographs
66 trips to dunkin' donuts....



The year, 2008.  Week long road trip from Lake Winnepesaukie, New Hamphsire to Kennebunkport, Maine.  Photographs, family, food, lobster, driving, donuts, coffee, entertainment, bourbon, lobster, family, photographs.  A lifetime of memories and a time to forget the MS.  Love when that happens - when life surrounds you to the point of forgetting you have MS, that intrigue and curiosity cover up the symptoms.  Photography does that for me.
 



 For a look at our road trip click here.

Accepting pain- our new normal

* SEPT 11 * Date Set for 8th Annual Women in Pain Conference!

What is pain and how do we continually accept our new normal?
What an amazing day with over 100 sisters in pain put on by the talented and beautiful Cynthia and John from Http://forgrace.org.
Held at the LEED certified building of the California Endowment Center in downtown Los Angeles, the conference was full of information and resources, tears and laughter.
If you've never been to a LEED certified building you are in for a treat!
The topic this year was "Accepting pain, our new normal". There were folks with every type of chronic pain producing ailment. Mine is MS but I also suffer from fibromyalgia and arthritis. The daily pain becomes bearable only because there is no other option. Or at least the other option, being dead, is not preferred.
Here I am on a panel of women in chronic pain. My main goal was to not fall off the chair with my wobbly MS. To watch the conference and panel click here.
Pain and suffering in women of all ages led way to Tears and laughter filling the room. Hearts were ripped open to their barest and shared with the world. In order the lighten up the. Mod and ourselves during the day, we played games!
The conference leaders created games for us to play and discussed the importance of playing in life. Here were just a few distractions to keep us engaged. We played with chopsticks and made googly eyes for starters...
But the real message was about pain and how we all take a Heroes Journey to learn to accept our new normals. The heroes journey, as presented by Jennifer Hughes, shared with us all the importance of the heroes cycle, of the need to overcome a weakness I order to survive as a hero.
Based on and Taken from Joseph Campbell's 'the hero with a thousand faces" sourced by Wikipedia.org.
"A hero ventures forth from the world of common day into a region of supernatural wonder: fabulous forces are there encountered and a decisive victory is won: the hero comes back from this mysterious adventure with the power to bestow boons on his fellow man.[3]"
So what does this look like? There are several images of the heroes journey. Here is one from Wikipedia that sums it up nicely.
It is this heroes journey that we all must take in order to accept our new normals every day. As Jennifer Hughes said in her talk, Do you Dare? Do you dare to take this journey and accept your new normal?
I have dared and I have succeeded! Here we go....time for some acceptance. Let's do this!

MS Nurses in US!

For awhile now I've been reading about the MS nurses available in the UK and other countries, someone we can call for support and questions about multiple sclerosis. Well, we now have them here! Thanks to Genzyme corporation, maker of Aubagio, we now have access to MS nurses via their new service, "MS One to One". Click to sign up.
I learned about this program on my recent adventures in Chicago where I worked as a lifestyle expert at a seminar for Aubagio. (More on this later.)
Today I received this email about the program:
"Hi GirlwithMS,


We’re always on the lookout for helpful services that could benefit members of MyMSTeam. We recently learned about MS One to One®–a free program from Genzyme that lets you speak directly to an MS nurse during regular MS One to One call center hours–Mon—Fri 8:30 am—8:00 pm ET. In addition, there are also on-call MS nurses 24 hours a day, every day.
You can register for MS One to One even if you’re not on a Genzyme treatment.
We receive financial compensation from Genzyme to let you know about this program. It’s one way we keep MyMSTeam free while letting our members know about useful services. "
Man, I sure could have used this program 14 years ago when I was first diagnosed. Especially with all those newly diagnosed questions. But I could use it today for much needed continual support. So, I signed up.
You can even have a nurse call you and check in on you. How cool is that?!
So many features to engage in...check it out

Free to Pee!

CONTEsT!

In honor of snaughling, diapers and MS, I am running a contest to help promote Wearever incontinence underwear and build awareness around their MS projects such as fundraising for the MS Foundation.

Introducing the #FreetoPee contest!

Wearever provides financial donations to MS Foundation, who in return provides us all with lots of great information.

So, to enter the contest:

1. Check out the array of products at Wearever and see how they could make your life easier with MS

2. Share and Like Wearever:

"Like us" on Facebook

· Facebook: https://www.facebook.com/weareverus

"Follow us" on Twitter and Pinterest

· Twitter: https://twitter.com/WeareverOnline

· Pinterest: https://www.pinterest.com/weareverus/

 

It's that easy!

Remeber - Your input could help others in the same situation.

 

 

 

Making money because of My MS? It's about time!

Well, it's about time!

This gosh darn disease has cost me enough money, time and energy. It's about time we make some money because of our illness. And here is a great way that I make a few bucks, especially on those down days when I'm stuck in bed and the MS MonSter is on a rampage.

I just learned about an independent medical research company that wants our opinions and thoughts! Check out YourCareMoments.com. It is free, safe, private and confidential. I signed up and once a week or so I receive a survey about my medications and my multiple sclerosis.

The surveys take about ten minutes, depending. And in exchange for my honesty I received $7 in my paypal account. Now each survey is a little different. And the payments range from $3-$10. It may not seem like much but CHA-CHING. It ads up!

Who doesn't want a little pocket change for bus fare, a nice cappuccino or a glass of wine or something else? I know I do! And so worth it on my down days...makes it feel a little better to be stuck in bed with MS when I can make a few bucks.

Let me know what you think!

I'm off to take another survey. Then this afternoon, I'm joining some friends for fun on the town, paid for by YourCareMoments.com. Yay me!

Click here to sign up: http://yourcaremoments.com

 

 

 

GUEST BLOG: Jade learns about managing MS and more!

While I prepare for my trip to Pittsburgh for the next TakeActionMS.com on JUNE 13, I remember this gem of an #MSSupporter, Ms Jade. Check out her experience from earlier this year in Houston:

From our guest, Jade:

When I heard about Genzyme’s “Lights, Camera, Take Action On MS” campaign, I was immediately interested. As the friend of a caregiver for someone with multiple sclerosis, I found myself growing nervous whenever my friend would mention the disease. I assumed that because I didn’t know much about the disease that I had little to offer. Frankly, I was afraid of asking questions about it. My attempts to stick to safer topics had only left a divider between my friend and I. Without hesitation, I signed up for the Houston event, hoping to get an idea of what to say or what to do when supporting a caregiver for someone with MS.

The Girl with MS and author, Jade, meeting up in Houston!

Before the event, my nervous nature kicked in and I was almost too afraid to go into the conference. I was terrified that everyone would ostracize me. I don’t have MS and I couldn’t help but assume that it meant I didn’t belong. However, the minute the presentations started, something resonated in me. I don’t have MS, and I can’t begin to imagine what that would be like. I do suffer from chronic migraines, another neurological disease. I’ve never stopped to compare the two because I always assumed that migraines were nothing compared to other neurological diseases.

When I get a migraine, everything is a struggle. I get so sick that the blood vessels burst in my face. My speech is slurred and my eyes roll back in my head. I’m unable to make eye contact with those speaking to me and often am unresponsive when spoken to. Eventually, I lose coordination, many times fainting, which has resulted in hitting my head more times than I can count.

It wasn’t until the interactive kiosks that I realized how much I understood the disease. It was the seminar on Managing Stress that really hit home. Lifestyle expert Caroline Craven spoke of different ways to maintain a calmer, healthier lifestyle. Like those with MS, I’ve had to keep a plan B in case a migraine popped up. Stress, changes in weather, a simple fight with someone could invoke a migraine. Learning to accept help was another life lesson that I’d been forced to learn. While I’m proud of myself, it’s nice to know that the instance I start pressing on the bone above my eye my husband will grab medicine and water for me. More than anything, when Caroline talked about humans being the same as our smartphones, and needing to power down when our batteries are running low really struck a chord. I know firsthand how planning too much or trying to do more than I’m capable not only wears me down, but causes relentless migraines.

I had spent so much time worrying over what the right thing to do would be that I had never thought of the childhood lesson, “treat others how you’d like to be treated.” I had shied away from offering to help because I was afraid of infringing on self-sufficiency when in reality, all I was offering was a sample of human compassion. I had let myself feed into a stigma of the disease, too afraid to show my altruistic nature.

I found comfort in the MS panel. When MS Ambassador Leslie Cunningham talked about co-workers not understanding side effects of MS (such as being tired despite getting a full nights sleep,) I understood. After all, I’ve taken neurologist notes to previous jobs only to have them regard my illness as “little headaches.”

She mentioned her friends helping her with the injections of medication. Because I’m often unable to keep anything down, the doctor prescribed forced air injections. I know the terror Leslie must have felt, although I was fortunate enough to take my injections sporadically. The medication was forced so rapidly through a glass pinhole that it left welts and bruises on the injection sight. Even mentioning the shots caused me to hyperventilate. Like Leslie, I was unable to give myself the injections and often relied on my husband to administer the medication.

Actress Madeleine Stowe talked about how different the disease and it’s treatment was during her father’s struggle with the illness. Without modern technology, her family suffered in silence. Very little was known on the disease. Even with today’s technology, so little is known about the causes of my migraines. I’ve tried eliminating certain foods from my diet, following a strict sleep schedule, looking for ways to eliminate stress (such as meditation or exercise) and even taking daily medications to prevent them. In reality, my migraines were as sporadic regardless of any type of regimen.

I had gone into the Norris Conference Center expecting a cut and dry answer; say this but not that. Do’s and don’t’s. Instead, I realized that I had the answers all along. There is no simple answer. Each person with MS, just like any other illness, is unique. Even if the offers aren’t taken up, the fact that I offered would mean more than remaining silent. As for learning what to say, I realized it isn’t about what I ask. It’s more about accepting the answer. There doesn’t need to be a reason that someone with MS feels tired. They don’t have to look sick. I traveled halfway around the country in search of a better understanding on multiple sclerosis and instead received a life lesson on human nature. Patients with MS and their caregivers don’t need someone to be there with all the right answers. They just need someone to be there.

Caroline with Madeleine Stowe

Learn more at http://TakeActionMS.com